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5 Replies Last post: Sep 3, 2009 2:57 PM by Emily87  
rbr  
rbr
3 posts since
Aug 22, 2009
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Aug 22, 2009 10:10 PM

22 year old in boston diagnosed with ET

My 22 year old daughter was just diagnosed with ET.  We are looking for referrals to doctors in the boston area.  I am also interested in "'talking" with either young adults with this diagnosis or their parents.

 

thanks,

Ruth

Tex  
Tex
3,848 posts since
Apr 3, 2009
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1. Aug 22, 2009 10:50 PM in response to: rbr
Re: 22 year old in boston diagnosed with ET

Hi Ruth,

 

I'm figuring you're talking about Essential Thrombocytopenia?  If you'll look at the main forums menu and click on "Living with..." you'll find a forum towards the bottom of the page that's kind of a catch-all and includes that condition.

 

We don't see a lot of this stuff around these boards.  I do hope you make a connection.

 

Blessings

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rbr  
rbr
3 posts since
Aug 22, 2009
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2. Aug 22, 2009 10:57 PM in response to: Tex
Re: 22 year old in boston diagnosed with ET

Thank you Tex.  I have reposted on the "Living with..." thread.

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DEE11  
DEE11
534 posts since
Mar 26, 2009
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3. Aug 25, 2009 9:16 PM in response to: rbr
Re: 22 year old in boston diagnosed with ET

I believe Emily chimed in to talk she is also in her twenties and has been through alot. It would,nt hurt to chat back

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Emily87  
Emily87
382 posts since
Apr 3, 2009
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4. Aug 26, 2009 3:53 PM in response to: DEE11
Re: 22 year old in boston diagnosed with ET

Hey, Ruth. Just dropping in to see how things are going with Molly. I sent you a reply e-mail on saturday or sunday I believe. Haven't heard back from you. Just wanted to make sure everything was going ok.

Emily

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Emily87  
Emily87
382 posts since
Apr 3, 2009
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5. Sep 3, 2009 2:57 PM in response to: Emily87
Re: 22 year old in boston diagnosed with ET

Ruth,

Checking in to see what's going on with Molly. Let me know if there's anything I can do to help.

Emily

 

http://pages.lightthenight.org/gat/StLouis09/emily87

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