I finished chemo and radiation for mediastinal NHL 3 years ago. I have had several periods of time where I have had breathing issues and have heard a variety of things from different specialists...from anxiety to pneumonitis. I have some areas of ground glass opacities on CT that have remained stable and I'm not concerned that I am having any type of a symptom of relapse.
I went to Wyoming with my children this week and we were walking down (and then up) a steep area to see a waterfall at the canyon area of yellowstone. On the way up, I literally thought I was going to die. I know that sounds melodramatic, but I could not get enough oxygen. I was breathing, but the oxygen seemed to not be getting to my brain or the rest of my body. I was having terrible pain in the lung that has damage in it and was doubled over trying to breathe. I thought my children were going to have to get help for me and I seriously wondered if this was it. Again, melodrama aside, it was quite a shock. My lung was burning and hurting and I was unable to get air.
After sitting on the trail for quite some time, I was well enough that I felt I was not going to black out and could get back up. I could not hike anymore or engage in any more activity and the burning/pain continued. About two hours later, every time that I exhaled I began to hear weird sounds from my lung. They started like a gurgling rumble and within hours became...like...a ghost trapped in the base of my lung moaning or something. <roll eyes at me...go ahead>. This lasted for roughly 12 hours....and....ok..here is where I will sound like a total nutcase: I recorded the sound on exhalation with my video camera several times. This has happened to me a few times, but it has always disappeared by the time I could get a doctor's appointment.
It has been two days and I am finally home. I am still having pain and burning on inhalation, but no more noise on exhalation.
1. Should I go to the doctor?
2. Would you take the audio recording in with you if you were me or does that seem crazy? I want the doctor to be able to HEAR what I'm talking about, but I'm afraid she'll think I'm nuts for recording it.
Thanks for your advice.
Kris