The Leukemia & Lymphoma Society - Fighting Blood Cancers
2 Replies Last post: Aug 15, 2009 12:30 AM by 1erm2005@optonline.net  
JoeFP   8 posts since
Apr 13, 2009
Currently Being Moderated

May 13, 2009 8:17 AM

My Story...

Diagnosed with Non-hodgkins, large B-cell lymphoma last December...right before the holidays. In fact, I got the byopsy results the day before Christmas eve...Oh boy, what a holiday we had. Truthfully, the whole holiday season is a blur to me.

Just completed 6 cycles of R-CHOP in April. I feel like I was lucky with the side effects. I smoked pot to help with my nausea and appetite issues. It worked like a charm...like I flicked a switch and the nausea waves were gone...and I had no trouble eating normally.

This may not be the ticket for everyone, but it worked for me.

I had bad heartburn the weeks I had treatment, so my doctor presribed an antacid that helped with that. Didn't really loose ALL of my hair, as one of the infusion nurses said I would. I lost hair on some parts of my body...that was kind of creepy I thought...but for the most part the hair on my head and face remained intact.

The other side effect I've had is the numbing feeling in my fingertips...which is more of an annoyance than anything else.

Now I'm waiting to get a PET scan to see how the treatments worked. I feel pretty good though. Still fighting the fatigue a little, but it's getting better every day.

My wife is nervous about the PET scan, as you can imagine...but I am optimistic.

At the risk of getting too ''preachy", I think it's extremely important to keep a positive attitude through all of this. I know it's hard sometimes, but I feel like there's no sense adding a negative, "oh woe is me" attitude to my situtation.

You know, "the beat goes on", and I'm not ready to stop dancing yet.

flasandy42   3 posts since
May 5, 2009
Currently Being Moderated
1. May 13, 2009 2:32 PM in response to: JoeFP
Re: My Story...

Hi Joe.......welcome to the board.  You'll find lots of good people and good advice here.  I was diagnosed with mantle cell non- Hodgkins lymphoma, Stage 4, Sept. 2007.  I had 6 rounds of R-chop also.  Out of the 6 I wound up in the hospital 3 times.  It was really hard on me but I made it through.  I had a stem cell transplant last May, which was also difficult.  The chemo you get in the hospital is very strong.  I'm not trying to frighten anyone, but I have to be honest.  Maybe I was just a wimp!  Some people just zip right through with no problems I guess. 

It's been a year since my transplant and I feel great. I lost the numbness in my fingers but still have it in my feet.   My PET scan last month was negative.     I even have hair now!   Keep us posted on how you're doing!  Keep the positive attitude even when you aren't feeling good.  I had rectal cancer 15 years ago and I think being posityive but practical cured me! 

Sandy

1erm2005@optonline.net   34 posts since
Jul 21, 2009
Currently Being Moderated
2. Aug 15, 2009 12:30 AM in response to: JoeFP
Re: My Story...

Joe,

 

The numbing in your hand(s) may be the beginning of peripheral neuropathy, a side effect of R-Chop and other treatments.  Ask your Oncologist about it.  There are some medications for this-exercises too and oh yes, you may, if this is the case, look into acupuncture.

 

Let me know how you make out.  You may contact me at 1erm2005@optonline.net. I had R-Chop in 12/00-4/01 with peripheral neuropathy to follow.  I have had it in my right ring and pinky fingers and in both feet.  You may want to check out the additional side effects of peripheral neuropathy.

 

To your health.

 

Ed-- a 9 year VICTOR of follicular NHL

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