Well, tonight I went to my first support group for Leukemia survivors. I had mixed results. Because I was a first timer, they had me tell my story (which you can read elsewhere on the 'tell my story' board). That always gives me a little lift for some reason. Unfortunately, the rest of the meeting was dominated by a couple of people who had significantly different situations than mine. Everyone was using acronyms and talking about doctors and procedures that I was unfamiliar with, so that was a little confusing. But they were very supportive of me and gave me some literature to read and commiserated. That made me feel good. I'm going to try a different one next week. I'll keep my expectations low and maybe I'll be pleasantly surprised. It felt good to do something 'proactive'.
As always, thanks for listening,
Bo
When people have been through something like a long-term disease, it does help to tell the story. It gets the stress out, it helps you get it organized instead of bits and pieces floating around in your head. It does a lot of good. And one of the great things is when you get sick and tired of telling it, you know you've pretty well put it behind you.
Glad it was a mostly good experience for you.
Blessings
So I guess overall did you find the support group helpful? I am considering going to one in my area. I keep putting it off. I have yet to suck up the courage to go.
I'm going to re-iterate something Tex said - I've always heard that when you get bored hearing your own story, you're over it. Since it felt good for you to tell your story, you need the support group. I went to a support group for a wile - then they moved it to a different/inconvenient location. I found it helpful but there are times when the conversations don't necessarily apply. The key is to have a trained social worker in the group who can guide the conversation and make sure that people aren't left out. If there is someone like that in the group, you may want to talk to him/her offline and mention that it would help if acronyms and such can be defined for newcomers.
Kelly