On the two year anniversary of my dx, my love hate relationship with PCR tests falls into the love column today. My PCR went undetectable again. So that makes three CMR results alternating with low level positive results the other three tests. I should just go to 6 month testing and save myself the emotional trauma. I felt like this was a big test because I wanted to be in a good place at the two year mark. I was spooked after my last test when it jumped from negative to .004. I know that number is still low, but the previous detection was something like .00087. So the full decimal point movement was stressful. It goes to show that there is variability in the PCR and while the emotional side wears on us, we do have to try our best to not let our minds wander too much.
I know not everyone is doing as well and I think about all of you all the time. For newly diagnosed people, hang in there, life can get back to some semblance of normal. Of course it never gets 100% where it was, but we can still live rich and meaningful lives, even with this lousy baggage we have.
Best wishes to all.
That's great news--congrats! I also went from PCRU to .004 and then back to PCRU a couple of weeks ago. My onc encouraged me not to get bent out of shape about the .004 because of the variability you mentioned. But I was still relieved when I got the PCRU this last time.
Congratulations Lucky. You give me (and so many others) a lot of hope!! Keep living life (both the good parts and the challenging parts). And oh by the way, two year CMR on Gleevec 400mg does mean that your prognosis for a super long and fruitful life is excellent ... just make sure you aren't missing doses until you're ready to take on a Stop TKI trial.
I am hoping to follow in your footsteps ... my 15 month PCR on Gleevec 400mg is approaching rapidly ...
Keep up the great response!