The Leukemia & Lymphoma Society - Fighting Blood Cancers
14 Replies Latest reply: Sep 11, 2012 6:45 AM by Da2218 RSS

Advice for second opinion from Sloan-Kettering

hodg930 Registered Users
Currently Being Moderated

Does anyone have experience trying to get a second opinion from Sloan-Kettering? What's the best way to initiate this process? And how long does it take to get an appointment?


I have likely had a recurrence of Hodgkin's lymphoma and would like to get a second opinion from Sloan-Kettering in NY. I live in San Francisco and my oncologist is at UCSF. Any advice would be much appreciated. Thank you.

  • Re: Advice for second opinion from Sloan-Kettering
    markf Registered Users
    Currently Being Moderated

    I would recommend David C. Fisher (There are 2 David Fishers) at Sloan-Kettering whom I used as a second opinion.  His speciality is lymphomas.


    Mark

  • Re: Advice for second opinion from Sloan-Kettering
    poolmom Registered Users
    Currently Being Moderated

    Hi,

     

    My experience with Sloane-Kettering was with pediatrics. However, my experience was excellent. I called the general number for second opinions found on their website. They asked for the diagnosis and patient age. I was connected right away to the pediatric lymphoma department. The secretary took my insurance information and some details about my daughter's case. The next day, the secretary called and and asked for copies of the scans and the original pathology slides to be sent to them. Several days later, she called to schedule an appointment for us with Dr. Tanya Trippett. The whole process from first call to actual appointment took just under two weeks. The place is huge and intimidating but, I found it to be very organized. Everyone was kind an helpful. Best of luck to you.

     

    Eileen

  • Re: Advice for second opinion from Sloan-Kettering
    porciniak Registered Users
    Currently Being Moderated

    Do you have an appointment soon with your current onc?  If so, ask them for a referral.  I've found that most of them will expedite the process to an appropriate onc at the receiving institution.  This works well if you don't want to handle all the paper transfer, medical records, scans, etc. that SK would need for a counsult.

     

    If you'd like to select your own onc there, based on the research they do or a recommendation that works too

  • Re: Advice for second opinion from Sloan-Kettering
    esonet Registered Users
    Currently Being Moderated

    I work at Sloan-Kettering, and the best way to arrange for a second opinion is to call for an appointment:  800-525-2225.  The referral specialist will provide all the details you need to forward records and will be able to schedule the appointment for you.   Best of luck, Ellen

    • Re: Advice for second opinion from Sloan-Kettering
      hodg930 Registered Users
      Currently Being Moderated

      Thanks, Ellen! Do you think it would be more efficient if I ask my oncologist to make the referral or is it no different calling the number myself for an appointment. I imagine that having my oncologist do it would make the transfer of medical records easier.

  • Re: Advice for second opinion from Sloan-Kettering
    cgolden273 Registered Users
    Currently Being Moderated

    Hi-

     

    Our experience was much like Poolmom's except that I called on a Tuesday afternoon and were in Dr. Trippets office on Thursday morning with all scans, films and pathology reports in hand..

     

    Good luck, Cindy

  • Re: Advice for second opinion from Sloan-Kettering
    RoyPatti Registered Users
    Currently Being Moderated

    I've gone twice for a second opinion at Sloan Kettering in NY.  I have non hodgkins lymphoma since 1995.  The doctor I saw both times is Carol Portlock.  My doctor is in NJ and is on the TOP DOCS list and he taught under Dr. Portlock.  I was able to get an appt. thru my doctor that knows her.  However, both times I went, it was a long wait, a lot of paperwork, and an entire day, getting back and forth to the hospital, parking, etc., so just prepare yourself to spend the day.  (and I only live in NJ)  Good luck and I will be thinking of you. I do believe that Sloan takes a very "aggressive" approach, compared to other facilities.   Patti

    • Re: Advice for second opinion from Sloan-Kettering
      Da2218 Registered Users
      Currently Being Moderated

      Hi I am recently diagnosed with SZML- who do you use in NJ. I am in Northern NJ. I had two opinions on treatment with varied greatly. First was to take treanda then rituxin, second opinion says take spleen out. So I went for a third opinion to cancer treatment center of america.. they say spleen out.

More Like This

  • Retrieving data ...