Just a few things I noted:
Those pesky email notifications have been turned back on. Grrrrrrrrrrr. Use the pull-down menu next to your user name in upper-right corner. Go to "Preferences" and say "No" to all that stuff (unless you have no life and like all those emails).
There is now a need to "Friend" someone before they can take certain actions, such as send them an internal email. Probably for other things too. What's that about. They did not call it "Best Imaginary Friending" the person, but whatever. So we now must add each other as "Friends". Am trying to decide about Phil. Read this:
There is now a "Jive Genius".
No, that is not a reference to me, Phil; but thanks for asking. Now, I have seen the movie "Airplane" just as many of you have. But I do not speak Jive at the genius level. So I don't get this.
If we mention someone else in a posting, we can put an @ in front of the user name, such as @PhilB and that does something unknown but somehow highly relevant. It probably sends them a pesky email. I think I will @PhilB in all my postings. What happens if you do this:: @PhilB@PhilB@PhilB Maybe it crashes their email. Maybe it turns PhilB into a Jive Genius.
There is a "check mark" thingy where you can list "what matters". Why does THAT matter? Where do you put things that don't matter?
Still trying to figure out that Jive Genius thingy. More fun-making to come......
Seems the "Bolded Unread" feature at the main page is missing. Bummer. But I found that if you click on the "down arrow" thingy at the top of the page, then select the "Unread Only" box (next to "filter"), then you can use this "down arrow" page as your reading point since only unread items should be there. And when there is a new unread posting, a number will appear on the arrow showing how many new unread postings you have. @Sharts-o-matic
[NOTE: Found later that this only works for some discussions the website thinks you care about -- not all the ones you really want to see. See Caroline's inputs below about using the "Content" Tab and clicking on "Discussions"]
Message was edited by: Trey Fox
Oh my goodness --- I just woke my kids up laughing so loud at your posts, Trey!! I would "like" them, if I knew how, and nominate you for Jive Genius, if I could.
Now I am off to explore, but had to let you know that you made my day with your humor!
Oh, and let me throw in a few for the team. @PhilB @PhilB @PhilB
The buttons on the top of the page such as "Home" and "Browse" are not CML-only stuff. They take you out into the ionosphere where the vast unwashed masses live (L&LS home page). And "Browse" has all the postings from all the forums. So if you use that you will end up in Shartsville.
Pointer: If you use the "Home" or "Browse" buttons on these pages, the only way to get back to the CML postings is to go back to your internet browser and use your bookmark again to re-load the CML page. Or maybe you can click your heels together -- no wait, that's another thing....
If you click on the tab that says "Content," it looks somewhat the same as it used to look (at least to me). There is the option on there to filter by tag or multiple tags. I am assuming, though, that you would have had to attach tags to your discussion for it to recognize it. I never seem to remember to attach tags.
It seems like everything above the words "Chronic Myelogenous Leukemia" In Living With takes you to Shartsville, and the items below those words are exclusive to our little family.
The mouse is the hand held object that you can maneuver the "cursor" around with. Some mice come with buttons on them, some do not (mostly apple mice). My mouse has two side buttons, and I have assigned one of the buttons the job of making my browser go back one page. You can personalize your mouse through the "Windows" program by going to "Start" then "Control Panel" then "Mouse".
You should consider taking a class in basic computer use. They hold them at your local library all the time.
Or just go to your local library, sit down at one of their machines, and ask the 10 year old sitting next you how to use it.
Next to my name at the top right corner is my name and a small black triangle if I click on the triangle i just get a circle with a line drawn through it.(no access). But if I scroll down a bit There is a list of actions that says receive e-mail notifications is that what is should click on to stop e-mail notifications? But then at the bottom of the page a window comes up and says you will no longer receive e-mail notifications from this item- if I click again it says you will receive e-mail notifications from this item. Do I have to do that every time a person answers a post. I have about 30 e-mails in my inbox. I take it you had this problem before I joined. At first I was getting e-mails on my other computer,then it stopped except for Susan and Lucky. My daughter has been receiving all my e-mails at work shortly after I bought this computer. How can that be? She only touched this computer once and that was just to try to post my picture on this site. I found a place where it says I can turn windows live off and on but I'm afraid to turn it off Lord knows what will happen. Do you think this is a problem with my cable provider? I haven't called them yet I'm not mentally stable enough to deal with them right now. I'm sure my daughter will be calling me tomorrow as soon as she goes to work and sees all these e-mails.
Why did they do this? Why fix something if it isn't broke? I just learned how to send private messages last week!
These people are full of shart and I hope they all experience what Gleevac sharts are like. I would appreciate any info you can give me. Billie
What does the LLS Messge board and FB have in common? They keep changing things too much and soon will cause a mass exodus to another social networking site! I'm old now, and my brain doesn't get the new stuff as fast as it used to.......familiarity is good........
I want to go back to the way the board was two changes ago
@PHilB @PhilB @philb
Do I have to use Facebook to understand this thing? FB is not my cuppa.
However, one good point to the upgrade - I can now post discussions and replies using my iPad, couldnt do that before.
Still, all I can say is egads!
And LLS folks, (or is that @LLSadmin) if you're reading? That's one of the worst rollouts of new software I've seen. Your intro to the software update is not very helpful. I got more out of Trey's pointers and the following discussion than I did your file..
To get the look of the "old" software, start where the old bookmark put you ("Living With CML"), then click on the "Content" tab, then click on the "Discussions" tab. Then Bookmark this as your new starting page.
But don't delete the old Bookmark for now until you see how this works for you.
Like anything else new, change is always a bit frustrating. It is a catch 22. Some people will like the new changes and others will find it challenging. Given the audience there should be more discretion in dropping such a drastic change on everyone overnight. In the long run, if you can figure out the features, there are some cool ways to keep track of things however there is a major flaw in what they are trying to do in my opinion. This latest change, in many ways benefits from commingling data from various boards. The problem with this I think is that the subject matter is well segregated for very good reason. People with NHL are not all that interested in reading about topics related to AML and CML people don't benefit much from reading posts about CLL. Yes we can all come together as a cancer community to support each other more, but the reality is that there are different boards for different subjects for a reason. It will be interesting to see if there is more cross board posting and if there will be any benefits from it.
Youse guys are making it very hard indeed for me to keep away from this place whilst I wait for my results.
@Trey, @Trey,@Trey, @Trey, @Trey,Trey, @Trey,@Trey, @Trey, @Trey,@Trey, @Trey,@Trey, @Trey, @Trey,@Trey, @Trey,@Trey, @Trey, @Trey,@Trey, @Trey,@Trey, @Trey, @Trey,@Trey, @Trey,@Trey, @Trey, @Trey,@Trey, @Trey,@Trey, @Trey, @Trey,@Trey, @Trey,@Trey, @Trey, @Trey,@Trey, @Trey,@Trey, @Trey, @Trey,@Trey, @Trey,@Trey, @Trey, @Trey,@Trey, @Trey,@Trey, @Trey, @Trey,@Trey, @Trey,@Trey, @Trey, @Trey,@Trey, @Trey,@Trey, @Trey, @Trey,@Trey, @Trey,@Trey, @Trey, @Trey, @Trey,
I have to say I absolutely HATE this. It's appalling. Anyone want to suggest another site we should all move to?
The @PhilBs didn't do anything to me either, but friend requests did send weird emails telling me I had an 'action'. From my laptop I could at least still get back to the CML section. From this older computer I can't get anywhere near it.
Can they PLEASE put something on the home page that links to the individual communities again. And could someone please tell them that if we wanted to be on facebook we'd go to facebook. I suspect a huge percentage of anyone over a certain age is just going to give up.
I tell a lie. You can get to the CML list - but only if you can find one of our messages in 'recent activity', open it and then select 'more discussions in...' at the top. Just about survivable for us. No chance at all for anyone on the less active communities. Someone really needs a slap.
Two quick ways I have found to get back to the Living With CML board.
In the upper right next to the Search line is an icon that looks like a clock - it is the history icon. If you have been in the CML section before, when you click on the clock, it should open a small window and under "Places", you should see the Chronic Myelogenous Leukemia board.
You can also type CML into the search bar and hit enter, the first messages that come up are going to be from the CML board location and you can click from their to get to the board.
You can also book mark in your browser http://community.lls.org/community/bloodcancer/livingwith/cml
and that will take you right to the CML board.
From Home page go to Discussion Boards, Living With, CML board
Lastly, if you "Follow" the CML board by clicking the "Follow" button in the upper right area. You can then click on "Browse" and go to "Places" and selected "Followed", which will give you a link to CML board.
Ok that is more than two ways!
I like this bookmark:
Puts you smack-dab into the CML-only location where the unread discussions are bolded. When I get sharted out by the extraneous L&LS buttons which seem to be there only to send me into a screaming coriolis spiral, I just use the bookmark to get back where I want to go.
Thanks for the bookmark - it was going to send me crazier than I probably already am trying to remember what I had read and what I hadn't.
Interesting how it tucks things in when you reply to people - makes a little bit more sense for people when they are chatting with each other. Though I 'm not sure whether you might also miss things as they slip up the page into an earlier section.
Imagine this Jive Genius trying to figure out if sending pictures of moose and plastic buffaloes has some deep meaning in the inter-personal relationships cooperative blah blah blah. It thinks it can figure out who should talk to whom and which people we want to socially interact with. Hah hah hah. That is such bovine sharts.
On another note, I figured out how to load pictures into the postings. The moose and plastic buffalo was my first choice, but here is my second choice:
PhilB's Pet Squirrel
(aka "Jive Genius")
Herodutus the squirrel is not just a pet. He has been carefully trained to lie motionless on my head, ever since my hair started receding, as a nearly undetectable toupee. The photo was taken during one of our training sessions. He is incredibly good at his job, apart from one lapse at a party when someone started handing round the peanuts.
Might I suggest we all go over to Jerry's site where everyone is welcome (http://www.newcmldrug.com/)? It's a great site and certainly doesn't have all these bells and whistles to deal with. I will most assuredly not be giving any more donations to LLS to sponsor something that the patients don't like and can't use! LLS you have my permission to delete my board membership anytime you wish! It also might be a good idea for you to poll your patients to see what they want before taking such drastic actions with your SUPPORT BOARDS in the future!
LLS didn't have an option on this. The vendor they license the software from made the upgrade and in order to maintain their support contract, they had to upgrade. I work in tech and see this all the time. It can be frustrating, but it is worth noting that all the old functionality is still there, it just looks a bit different and after you figure out where to go to get it things are pretty much the same. You do not need to use the social media features, in most cases it is not necessary to friend or follow someone. Just go to the CML board and go through the threads like you always did.
Jerry's site is wonderful, but if you recall Jerry's site just went through a major transformation in recent months. He had much older technology that became susceptible to spam attacks. He had to take his site down for a few weeks and completely rebuild it with new software. It looks nothing like it used to, people had to get used to it, and his traffic still does not not seem to have gotten back to the level it was - although I think it is starting to pick up again.
Unfortunately with technology, change is a constant and no one likes change. After some use, this new style will feel comfortable and it won't be much of a big deal anymore - try to stay with us, the support here is what keeps us coming back, not the functionality of the forum software.
I'm getting emails same way I always did. If I respond to a thread, I start getting emails when others respond to that thread. If I don't do anything to it, I don't see activity. Trying to figure out exactly what "Follow" does. I think it adds the activity to my "News Feed" but doesn't send me emails. I have to click on send email notifications if I want emails for a thread I have not replied to.
Can I just say how wonderful it was to wake up and read these posts!!! This morning I think to myself, "I'll just get on one more time and spend a few minutes to see what's going on". I'm having some difficulty learning the new site. Yes, I was wanting a like button, sometimes I just like what someone says, don't really want to comment just want to "like". Couldn't we just have added that option??? I guess my project for the weekend will be to learn the new site, ugh. I'm ever so glad I chose this discussion to read as it had me laughing out loud, or lol...what a great way to start my day! So glad to see you back Phil, though I rarely comment, I thoroughly enjoy reading your posts and comments esp between you and Trey.
Thanks all for a great start to my day!
helenet - try this http://community.lls.org/community/bloodcancer/livingwith/cml/content
Which "Stuff" are you looking for?