I didn't want to hijack the other post, but man this really hits home for me and I'm sure many others out there. When Ray was first hospitalized and diagnosed, his sister (who is really the only living immediate family he has left) damn near had to be dragged up there. Of course to hear it from her, she was there as "often as she could" be. She has all grown children (20s and 30s) and is a social worker in a nursing home so you'd kind of think maybe she has a clue. Of course she is all puffed up that she "might be the one to ultimately save his life via transplant" and has everyone just oohing and aahing over her and what she may be going through. She lives 10 minutes from our home and works even closer (and that is in rush hour traffic) and she has been here once since he came home at the end of January. She calls about every two weeks. It's really funny cause she works w/my oldest daughter who will come home and tell me how everyone is fawning over her aunt because this must be so stressful for her.
BS!! She uses every excuse in the book not to come over - she may have been exposed to something, she doesnt want to get him sick, etc. Does she think we are walking around the house masked and gowned? Prior to his being sick, my SIL and my nieces and nephews, were always stopping by unannounced and we never cared. We have always had an opne door policy. But now looking back I see that usually when they came over it was because they needed something, not really because they wanted to visit.
I found, at least for my husband, that trying to keep things as normal as possible for him worked wonders for his spirit. The kids (my kids are all in their late teens early 20s) would have their friends still come over and hang out jsut like before he got sick. Of course if anyoen wasnt feeling well, they used the back door and skipped the whole hanging out in the living room with Mr. G catching up. They all learned the value of antibacterial hand wash, etc. and even wore masks and gloves just to mess with him from time to time.
I think it just burns me because my SIL is the type who will drop everything for a neighbor or acquaintance, but if it is family, it just doesnt happen. She will tell me "Gee, you've been so strong through all of this and taking care of everything" and I'm thinking to myself, well hell yeah - you sure haven't stepped up. I did ask her once to come over and watch him so I could go grocery shopping right after he came home. Ray was having some really bad mental status issues and I just did not want the kids to be alone with him in the event something happened. I didn't need them to feel responsible for him like that. I swear, we had not even finished unloading the groceries from the car through the back door and she was out the front door and gone. Not even a "bye - gotta run, something came up" nothing.
My friends and my brother's wife have been godsends. Ray was hospitalized for the entire month of January and transferred from one hospital to another and it was crazy here with one snow storm after another, trying to balance school schedules and work transportation logistics, etc. They brought groceries, cleaned, ran my youngest around when my oldest two just couldnt do it and brought enough meals to feed us for almost two months LOL!! My SIL and her family - not even an FU, which would have at least been some sort of acknowlegement.
I think it hurts because I was a caregiver to both my husband's father when he battled lung cancer and his mother who died of complications from Crohn's and emphysema. Ray and I and the kids was there every single day with both of them, whereas she didn't want her kids to witness their failing health. I think my kids being there and seeing the gradual changes in their grandparents actually was helpful then when their father became ill.
I know I'm rambling, but I hate it when people say, "you just gotta ask". I can see maybe from friends or neighbors, but this is family and family helps each other. It's just kind of ironic, especially with my SIL being a social worker and all. Who better to know that sometimes just a quick visit so that the caregiver can take a short walk, or a drive, or even just do a quick pick up around the house. I can't imagine, especially with younger kids, that someone would not even think - hey, let's take the kids for icecream or something and get them out of the house for a half hour.
Okay, off my soap box. I feel better, kind of. Maybe a little sad and I shouldn't be. Ray has his 6th and hopefully last RCHOP treatment in the morning and as of his last PET scan, he is in 100% remission. Not bad for a guy who was diagnosed with follicular and B cell NHL as well as Hodgkins and they were not even sure he was gonna make the transfer from one hospital to another. He even managed to put back on the 30 pounds he lost, all during chemo. His doctors are amazed and so am I by his strength.
So after tomorrow we wait until his follow-up PET Scan in July and then wait and see what's in store next.
Thanks for listening.