The Leukemia & Lymphoma Society - Fighting Blood Cancers
7 Replies Last post: Jan 31, 2010 1:04 PM by EASNJ  
MaureenGlvn   26 posts since
Apr 4, 2009
Currently Being Moderated

May 13, 2009 12:54 AM

Family Vent

I didn't want to hijack the other post, but man this really hits home for me and I'm sure many others out there.  When Ray was first hospitalized and diagnosed, his sister (who is really the only living immediate family he has left) damn near had to be dragged up there.  Of course to hear it from her, she was there as "often as she could" be.  She has all grown children (20s and 30s) and is a social worker in a nursing home so you'd kind of think maybe she has a clue.  Of course she is all puffed up that she "might be the one to ultimately save his life via transplant" and has everyone just oohing and aahing over her and what she may be going through.  She lives 10 minutes from our home and works even closer (and that is in rush hour traffic) and she has been here once since he came home at the end of January.  She calls about every two weeks.  It's really funny cause she works w/my oldest daughter who will come home and tell me how everyone is fawning over her aunt because this must be so stressful for her.

BS!!  She uses every excuse in the book not to come over - she may have been exposed to something, she doesnt want to get him sick, etc.  Does she think we are walking around the house masked and gowned?   Prior to his being sick, my SIL and my nieces and nephews, were always stopping by unannounced and we never cared.  We have always had an opne door policy.   But now looking back I see that usually when they came over it was because they needed something, not really because they wanted to visit.

I found, at least for my husband, that trying to keep things as normal as possible for him worked wonders for his spirit.  The kids (my kids are all in their late teens early 20s) would have their friends still come over and hang out jsut like before he got sick.  Of course if anyoen wasnt feeling well, they used the back door and skipped the whole hanging out in the living room with Mr. G catching up.  They all learned the value of antibacterial hand wash, etc. and even wore masks and gloves just to mess with him from time to time. 

I think it just burns me because my SIL is the type who will drop everything for a neighbor or acquaintance, but if it is family, it just doesnt happen.  She will tell me "Gee, you've been so strong through all of this and taking care of everything" and I'm thinking to myself, well hell yeah - you sure haven't stepped up.  I did ask her once to come over and watch him so I could go grocery shopping right after he came home.  Ray was having some really bad mental status issues and I just did not want the kids to be alone with him in the event something happened.  I didn't need them to feel responsible for him like that.  I swear, we had not even finished unloading the groceries from the car through the back door and she was out the front door and gone.  Not even a "bye - gotta run, something came up"  nothing. 

My friends and my brother's wife have been godsends.  Ray was hospitalized for the entire month of January and transferred from one hospital to another and it was crazy here with one snow storm after another, trying to balance school schedules and work transportation logistics, etc.  They brought groceries, cleaned, ran my youngest around when my oldest two just couldnt do it and brought enough meals to feed us for almost two months LOL!!  My SIL and her family - not even an FU, which would have at least been some sort of acknowlegement. 

I think it hurts because I was a caregiver to both my husband's father when he battled lung cancer and his mother who died of complications from Crohn's and emphysema.  Ray and I and the kids was there every single day with both of them, whereas she didn't want her kids to witness their failing health.  I think my kids being there and seeing the gradual changes in their grandparents actually was helpful then when their father became ill. 

I know I'm rambling, but I hate it when people say, "you just gotta ask".  I can see maybe from friends or neighbors, but this is family and family helps each other.   It's just kind of ironic, especially with my SIL being a social worker and all.  Who better to know that sometimes just a quick visit so that the caregiver can take a short walk, or a drive, or even just do a quick pick up around the house.  I can't imagine, especially with younger kids, that someone would not even think - hey, let's take the kids for icecream or something and get them out of the house for a half hour. 

Okay, off my soap box.  I feel better, kind of.  Maybe a little sad and I shouldn't be.  Ray has his 6th and hopefully last RCHOP treatment in the morning and as of his last PET scan, he is in 100% remission.  Not bad for a guy who was diagnosed with follicular and B cell NHL as well as Hodgkins and they were not even sure he was gonna make the transfer from one hospital to another.  He even managed to put back on the 30 pounds he lost, all during chemo.  His doctors are amazed and so am I by his strength. 

So after tomorrow we wait until his follow-up PET Scan in July and then wait and see what's in store next.

Thanks for listening.

Prayers for my Mom, by Nicole   1,165 posts since
Apr 3, 2009
Currently Being Moderated
1. May 13, 2009 9:07 AM in response to: MaureenGlvn
Re: Family Vent

Maureen,

Let me just say you are not alone!  Over the last 3 years of my mom issues it has taken me 2 1/2 years to accept that I have no control over family.  I have a brother who lives only 4 hours away, my sister and I live 12 hours away, and we have been to visit more.  I accept he is the baby and does not handle this the way we do.  I have a SIL who never calls my mom, even though my mom has cried and cried about not getting to see her grandbaby grow up.. I accept she was raised differently and her family is more important. I have aunts and uncles who have most likely do not like me because of the way I have used my mom's Caringbridge and spoke about research in the past and other people... They feel I am wrong for talking about anything other than my mom..I have even been reminded by one of all the hell I put my mom thru when I was younger, "Can you believe while I was lost about the possiblity of losing my mom someone would have the nerve to say I have been a bad daughter".. All of this while I have been in the middle of much family heat over the years concerning the dislike for my father some family have had for 36 years of my parents marriage.  I have stood tall and will not let them get the best of me, even though there were days that I would cry over the hurtful things they have said and did. The day my mom went into emergency surgery not one family member called my sister and I.. Of course we got on the next plane and was there by 1 am.  On our way there we called everyones cell phone to see if our mom was okay and NO one answered, No one called us....I will tell you this is not about me, but there own personal issues, just as the same for you!  It is hard very hard, but do your best to not let them get the best of you!  Hugs, nicole

khenry   134 posts since
Apr 23, 2009
Currently Being Moderated
2. May 13, 2009 3:09 PM in response to: MaureenGlvn
Re: Family Vent

Maureen,

I have learned in my days on this planet that many people are attention seekers and that they soak up what ever they can get.  It is her conscious that has to live with what she does.  The only thing you should worry about is that your husband is alive and doing well, that the two of you will continue on with your lives together and he acknowledges you and your children. 

Beleive me, when I say my husbands mother sends money and his grandmother sends money.  Neither of them have any clue what is really happening with his health.  None of his friends come over to the house unless they want something.  One tried to come over sick while he was vulnerable.  I yelled at the guy to never come back, that how dare he try to see Tom while he is running a fever.  Then his family complains about me not having all day long to clean up after him, cook for him (including lunch while I am at work). 

What I am saying is that you cannot worry about what others do and think, because their opinions don't mean a thing.  If they are attention seeking don't engage in it and it won't hurt you.  The important part of everything is that you know that you are doing everything you can for your husband and be ok with it.

Kristen

PS.....Family can be the worst part of Cancer.....

 



messyme   2 posts since
May 26, 2009
Currently Being Moderated
3. May 30, 2009 12:21 PM in response to: MaureenGlvn
Re: Family Vent

Sounds like a little reality check is happening.  First a few facts, 75% of people not in the direct patient care in the healthcare field are afraid of sick people.  100% are afraid of the big "C" for various reasons.

Now, take two steps back and look at the family.  They really are the same now as they were before the illness.  What has changed is your needs and the desire for them to be more passionate.  This makes you human.  Prior to the illness you were able to either ignore them or tolerate their short comings.  What is actually happening, is that our tolerance for rude people and their fears are now more apparent. When we are physically tired, we are also senstive to those feelings.

Everyone of us have these same kind of people in our lives, some we knew about and some who have become a surprise to us. This includes family and friends.  Friends you thought would always be by your side have suddenly disappeared.  Family members, who now realize financial support has come to a close, will disappear.  Friends, you may have never thought about helping you are at your side.  God simply put us into a reality check.  Ummmm....No matter what the reasons, it will not make you feel better at this point, except maybe the momentary venting.

Opinions are just what they are!!! They old saying, "They are like a..holes, everybodies got one"  And nothing hurts our feelings more than to have someone, who is not around, does not help, provide us with their helpful thoughts on what they think we should be doing.  This actually happens all the time, your job, child rearing, how clean should your house be, what you should wear for your age..... and the list goes on.  We tend to get in a tunnel with the walls closing in.  So, what's the next step. Vent and get out of the tunnel

Frist, the old buddy of your hubby needs to be educated and not barred.  He maybe one of your hubby's lasting friends.  Otherwise with out knowing this you could be isolating your hubby.  This is not what you want.  Our fears can result in negative behavior will had no intentions of producing. 

At this moment, I am gathering the DH and taking him fishing.  Something we both enjoy.  Something we can do with or without friends.  Relax from my stressful job.  Forget about the housework and laundry.  Paid the bills last week, worry about the half empty cabinets later.  It will all be here when I return in two or three days.  Nothing will change, but I will be a little happier (LOL).  I'll come back to DH having chemo the next day, 4-12hour night shifts to work.  The clinic will want more money.  More laundry added to the two piles I left in the floor, two inches of dust on the furniture (that will probably be there until Thanksgiving, cause all will come visit for free food) and the list goes on.  I'll just smile because humor is my best friend.  I'll be thankful that we had these quiet peaceful days together that noone else can touch.

My best advise, throw yourself a party.  Sneak off with you and hubby for fun.  Let hubby have a party with a couple of friends and leave the house.  Let them pickup the snacks, you provide the few healthy things you know they won't eat.  By the way, all my christmas shopping is done, because I hit the sales and find the good bargains.  This small item is for me.  Be impulsive, don't do a lot of planning, or it will all fall apart.  Step back, take a couple of hours, have a margarita, glass of wine or a bloody Mary cause you want too.  Your answer to everyone's questions or concerns during time peiod should be:  "imagine that", "oh really"and "this happens to be my moment, I'll get back to later, when I am thinking."  One of my favorite signs in my house reads "you know you're getting old when happy hour is a nap"

Ok, happy venting is fun and can be very humorous:

1) I have spend all day Sunday cooking food for the next three days.  Done all the grocery shopping for at least a month.  The first question out of DH mouth is "What do we have in the house to eat?" UMMM

2) I have worked 12 hours (night) The phone rings, the caller says "were you sleep", no just waiting for you to call.  Oh yes, DH was sitting next to the phone but knew it was not for him.

  Have others including the communication gap (smile)  got to go to a banquet just before leaving to drive 225 miles to fish for trout.

Have a good day, put on the smiles, and think of those stupid and funny things that happen everyday, that you can only ask God "why me"

norrim04   52 posts since
Jan 25, 2010
Currently Being Moderated
4. Jan 25, 2010 5:46 PM in response to: MaureenGlvn
Re: Family Vent

I know this is an old post but I'm new here and the topic caught my eye. I have a sister in law that I can no longer tolerate even in small doses. It's a shame b/c I love my brother in law, but she (her?) I can no longer deal with. In the weeks following my son's diagnosis (8/17/09) she told me multiple times how "I've never been so popular in my life since Joey got cancer" because of people asking her how things were. Fabulous. Glad my son's leukemia is working out so well for you. That is just one example of the kinds of things she says. My last straw was a couple weeks ago when she said to me, "What kind of a mother would put her son on Lexapro?" The kind of a mother who doesn't have the emotional energy to continue to deal with people like you, that's what kind!

pinkydo123   366 posts since
Oct 7, 2009
Currently Being Moderated
5. Jan 26, 2010 5:34 PM in response to: norrim04
Re: Family Vent

Margaret I've learned to ignore Todd's family.ESPECIALLY his sister.She had the nerve to go out and plan a wedding right smack in the middle of his diagnosis.She even went as far as to plan a wedding and ask him to give her away,while he had just undergone his first consolidation round.His Brother called and asked him to take him to get his licenses while he was sick.....so I know a little something about bone-headed people and his family take's the cake.I cope with them by not coping with them.I also told Todd unless they are saying something about helping him out,I don't want to hear anything about them.....to me they are very callous people and I have no room for them in my life.I'm civil because thay are his family,but I really have choosen not to socialize talk or associate myself with them

EASNJ   24 posts since
Jun 27, 2009
Currently Being Moderated
7. Jan 31, 2010 1:04 PM in response to: MaureenGlvn
Re: Family Vent

my sister was doiagnosed witgh ALL last year and I could not even imagine being there every chance I had. I have spend the last year and a half doing anything and everything I could. You must be so frustrated.

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