I've been away for a week or so. I've been thinking about the folks out here and hope folks are getting through this crap.
I've been in the hospital since last Thursday with a bowel obstruction. Had surgery on Tuesday and was finally able to start eating again today after a week (nice diet). They did find something that needed to be biopsied and I'll get the results of it tomorrow. I'm not worried because I always tell people here not to worry (ok, I freaked for a few hours). The problem is in my small intestine and that's not normally an area of much concern - my onc's words.
Just another reminder that we all should take advantage of life because it will certainly take advantage of us. So glad now that I decided to tour the rain forest when I was in Costa Rica in June.
Take care all,
Yikes! You've had quite an adventure. I think physicians are always extra-cautious with patients who have had cancer in their past. Dan just went to his doc because he thought maybe he was coming down with a little something (thought it was a cold coming on or an ear ache) & they sent him for a CAT scan! He's fine
Take Care & I hope your eating schedule is back to normal now!
There are better ways to get our attention! Hope you are on the mend and everythings turns out ok...I am a true believer in taking adavantage of the moment because who knows what curve ball will come your way in the morning. I loved your rainforest adventure! Kathy and I were just talking about camping next summer....2 years post auto sct. Get better...and let us know the results of the pathology report
Well boys and girls this hasn't been one of my better days. Turns out that the tumor they removed - the bowel obstruction - had leukemic cells. It's the same old AML M5 so at least I know the beast. I have a PET scan scheduled for Monday to find out if there are any other locations. When they removed the tumor they said they go it all. I'm already had a heart ultra-sound to start prepping things again for chemo.
My onc has already contacted the Hutch (see why I like this guy?). I've kept my donor cells frozen (write that down as a good idea). They're going to get the cells out and start checking them for viability to do a DLI. I'll have a biopsy next weeek - my blood work is great and shows no indication of this. I'll be getting my Hickman back this afternoon sometime - hope it's soon cause I'm hungry.
Where are we after a 4 year remission:
- I've said on here time and time again that we should not live our lives worrying that this crap might return. That's the way I've been for 4 years and I am so thankful that I didn't let it rule me.
- I'm not making any guesses at this point.but it could turn out that this one spot is the only one. The PET scan will be the key there and I'll have those results in 24 hours after the test.
- I'm really ok at this point. Physically I feel well - other than the stomach surgery spot. I'm very concerned about my family. My parents are 90 and just moved to assisted living - they're not going to handle this well and I feel guilty that it will affect their health. We're planning to tell my kids this evening. My one son lives in Louisville and is coming up this weekend so as long as he gets here will tell them. He's bringing my bastard granddog with him (his girlfriend's dog). So I'm really hoping I get discharged tomorrow and can spend the weekend with the dog (oh and my son).
- As I was writing this my brother stopped by with my parents. My mother always looks like a million bucks - still very particular about her looks at age 90. They were ok in front of me. I'm not sure how they're really handling the news.
I'm sorry if this raises doubts in others who are recovering. Don't let it. Like I said, I've lived the last 4 years like it wasn't coming back and that's the best way to do it. Now, I'll just keep moving forward (if one of you could just point the direction forward, I'd appreciate it).
Shit Kelly.....I told myself all night it was nothing. But you know what.....I know you are going to be okay again and you need one more go at some ass-kicking
and then on with life again. You have a special place in my heart because when Di got sick and I frantically posted for the first time, you and Tex were there with words of wisdom and were always there for every post. I am thinking of you as always.
I lurk here mostly - but felt compelled to send a reply with regard to your last post...I am so sorry to hear of the leukemia back again - no words I'm sure can do justice to a situation like this...your candor is much appreciated to someone just 6 months out of transplant...and I think we all can agree that in the back of our minds we KNOW that this beast can reoccur at anytime...it is hard sometimes not to live in fear but as you have stated you have lived 4 good years...I send all my prayers and good thoughts to you and your family...I look forward to your updates - all the best...
Not the news you or us wanted to hear. My initial emotion is anger and hate.
I'm sorry you have to start over just when the worst should be behind you. Nice move keeping those cells...we did the same just for cases like this. Heres hoping those lymphocytes kick the heck outta the Leukemia. You have always provided me with positive thoughts and I'm not surprised by your positive approach. I'm impressed how quickly you prepared your mind to go on the attack.
Time for the next battle to begin...