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New and Improved Blood Cancer Discussion Boards

Posted by lynnesmith in The LLS Blog, 19 August 2014 · 39 views
LLS, Leukemia & Lymphoma Society and 1 more...

Whether you're newly diagnosed, in the midst of treatment, or just looking for information, it's always helpful to have a place where you can chat with others who are going through similar experiences.

That’s exactly why The Leukemia & Lymphoma Society (LLS) offers blood cancer discussion boards - and why they were recently upgraded and made even more user-friendly. Want to know how others are dealing with their treatments? What side effects they’re having? If you’re the only one dealing with a particular issue? Those are the types of questions addressed, and because it’s online you can communicate at all hours of the day or night from the comfort of your own home.

More than 17,000 people (with 162,000 posts!) have turned to the boards to share experiences, information and advice over the years but participation dipped as some users became discouraged by technical glitches.

The revitalized boards use a new customized platform from a new vendor, and offer faster and more interactive service. Many of the modifications made were actually recommended by the users themselves.

LLS recently sent out an email blast to anyone who has previously registered and let them know about the improved system. That day more than 100 people signed on!

Users can visit boards specific to a particular disease; for the newly diagnosed, parents, caregivers or young adults; focused on treatment, finances, insurance, nutrition, sexuality or fertility; or addressing survivorship or grief. People can share stories, ask questions, receive and provide support, or just see what others are saying.

To access the new discussion boards, click here. If you were previously registered for the boards and have not yet logged in to the new site, you will need to reset your password. Learn about using the discussion boards in the Getting Started Guide.

If you have any questions, please contact an LLS Information Specialist at (800) 955-4572 (M-F, 9 a.m. to 9 p.m. EST) or send an email. You can also chat online or find a support group in your area.
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