The Leukemia & Lymphoma Society Community : Unanswered Threads - Financial and Insurance Issues

Plan D choice advice for a Gleevec user in CA.

communityreply@lls.org — Wed, 23 Sep 2009 15:39:40 GMT

We live in CA. My husband has CML, takes 600mg of Gleevec/day. He will be going on Medicare in 2010. We need to choose a Plan D. I would like to know if anyone out there , living in CA, is on a Plan D that he/she is happy with and what kind of annual cost they are incurring. I would really appreciate some info. on this issue.

Need Medication

communityreply@lls.org — Fri, 24 Jul 2009 20:11:17 GMT

My mother was diagnosed with Leukemia on April 4th and she has yet to receive any medications. She applied for pay assistance and there seems to be one glitch after another between the pharmacy, doctor's office, and the LLS (LLS has agreed to pay for her 1st month prescription). Currently, the pharmacy is stating that the check from LLS has been lost/misplaced, therefore, no prescription can be mailed out until payment has been received/verified.

Has anyone been in a similiar situation? if so, what advice can you share so my mother can get a resolution to this ongoing nightmare?

Thank you.

Donor search not covered?

communityreply@lls.org — Fri, 08 May 2009 18:33:57 GMT

Hello,

My wife had Lymphoblastic Lymphoma and completed 8 rounds of HCVAD and a year of maintenance chemo. Apparently the chemo damaged her bone marrow and now she has MDS/AML. Doesn’t cancer suck?

We are now looking at a stem cell transplant. We have good insurance but it will not cover the donor search. The hospital informed us that it will cost us 2-3K per match attempt and there are 30 potential matches. Normally they would test 10-15 but since we have to pay for them they will test 3-5 at a time. They will not even start the process without a 10K deposit.

As anyone else had this problem? Are there grants or programs we can apply for? With the lead time involved will we find the best match in time?

Troubled,

cwg