The Leukemia & Lymphoma Society Community : Discussion List - In Memory Of

In Memory of our past fellow LLS board friends!

communityreply@lls.org — Sun, 05 Apr 2009 04:40:07 GMT

I saw this forum and thought it would be the perfect place to remember those we have lost. I have been having a sadness about leaving the old board and our fellow mates who not only posted there, but found hope, inspiration, love, and support. Please feel free to add those you would like to bring with us. List there names onto the thread and if you would like your name and relationship posted also. I will add it to the list below so when anyone comes to the thread there will be a final list. Here are only a few.

4 Ever in Our Hearts!!

Jennifer Clancy- AKA Clanc

Barry Loos- MNladyslipper

Diana- Linda's Sister

Susan Johnson-Suzie Q

Randy- AKA Av8or

Ami- AKA Amigreenleaf

Nora

Kari

Joan Gray

Ray M., one of our Union of Hope losses. dj

LaurelB

Joseph - Gentylwind Sheri's son

Kenny - Sherry's son (Sherry and Sheri, please forgive me if I've mixed up your names)

Bart - Rodney's brother

Annie's daughter

Moe - who had a young daughter and whose father posted

Debbie (debutaunt)- A.L.L. PH+

ML aka mybmt -1981-2008

Angela aka rheanin1981

Deb martin- TheSister's sister

Warren,10-2-2007, fnhl - husband to Trudy

Uncle Pete 6-18-2005, Multiple Myeloma - Uncle to Trudy

Trudy's dad, 1-28-2008, MDS

Rosie,2-2008, f-nhl....

Patrick, JenniferJ's friend in Ireland

Laura Coyne

Robin Groff

Nicholas Knowles (sksyrac) http://nicholas-knowles.memory-of.com - (Shelly Knowles son)

Dawn- www.goshdawnit.com

Zach

Graham- (Sam's husband)

Michelle M.- (John's wife)

Claire- (John's wife)

Matthew Frazee (matthewsmom) - 4-9-83 - 6-30-09 (AML)

Elaine's mom (etron) - 8-09

Steve Green, 8-13-2009 - (Leslie's father) (lgwolfe or stagsgirl)

Adam (Trudy's son) - 9-09

Susan (mag7fan1) - 9-09

Zac (adcdad) - 9-09

Jean (binnie's mom) - 9-09

Beverly (Bevy Sue) Cook, 9-18-2009 (Nicole's mom)

Elliot (Angela or Ewife)

Jacueline Clover Fox, 1-15-2010 (Polly's mom)

Natale (Leila's daughter) - 2- 2010

Mark (aka Zeusey Dog & Z-dog) 2-20-2010.

In Memory of Zavie Miller

communityreply@lls.org — Wed, 11 Jan 2012 12:02:28 GMT

In Memory of Zavie Miller ~ You will forever be remembered. Thank you for all you did for all of us fellow CMLers. RIP

Nicholas Knowles

communityreply@lls.org — Thu, 17 Sep 2009 16:52:58 GMT

www.nicholas-knowles@memory-of.com

memory of past LSS board members

communityreply@lls.org — Sun, 15 May 2011 06:02:51 GMT

Please add my husband Mike Lord- 1952-2010- Annie, I miss him so much, the grief is almost unbearable.

Miss you Daddy

communityreply@lls.org — Mon, 03 Jan 2011 03:52:39 GMT

Six years ago today my dad lost his fight with NHL. I miss him every day.Love you daddy!

hugs and kisses from your baby girl.

i love you mom...

communityreply@lls.org — Fri, 22 Oct 2010 08:31:45 GMT

I stared at this blank screen for awhile. Watching the curser blink. With the title of i love you mom... I am 22 years old. My mom passed away August 31, 2009. She had ALL (Acute Lymphocytic Leukemia) she was diagnosed in March 2009... and passed away 6 months later. I didn't really know how to feel... and i still don't. It wasn't til now, that i just started reading more and more about it. I guess my curiousity for it grew when both my parents led me and my brother (16yrs old) on to believe shed be fine. Fine isnt even the right term because having cancer isnt just fine. but i had faith... and i kinda regret having it. i would have been at that hospital everyday. I cant dwell on the thought but its hard not too. My mother was not only my mother she was my best friend. She was my idol. We use to write to each other all the time... even though we lived in the same house... it was our thing. the last time we spoke ... was the night before she passed away.

Anyways....I didnt really register on here to post a memoir about her. Who knows there may not be a single soul to read this but i just have to get this out... because holding it all inside... isnt working for me anymore.

Dear Mom,

I know its been awhile since i wrote to you...Im sorry. I guess the idea of not getting a response, frightens me more than anything else. We didnt tell Gram that you passed away, you know it would have only confused her. But i honestly believe she was waiting for you. Like she knew you were sick, even though we didnt tell her because she passed away 3 months after you. Sorry for not telling you sooner. And im little upset at the fact you felt you needed a friend and took bailey. I mean mom come on you really had faith in me huh? To be that strong losing you and my puppy all in the same week. Its okay though because i didnt want you to be alone. Remember me telling you last year about that job as a pharmacy tech. i applied for. Well, i got it... I worked there til this past july... you know me, i always need a change. You missed christmas last year... it was weird. I decorated the tree for you, i knew it was always your favorite part... You know i can't stand it but i did it... because i knew brandon and dad didnt have the strength too. Something you blessed me with. Dad was defiantly the worst at giving gifts. I can tell you now though, you were totally santa when brand and i were younger. He gave me a gift card. It was cute though because he just hadnt a clue where to start, in what to get me. You missed my birthday i turned 22 and dont worry i got drunk just for you! =) i knew that would make you smile, only because you love me! I finally kicked Daniela out of my life. And yes mom, you were right. Yes, i know... mothers always know best. Laura still lives with me, she misses you too. Brandon is finally a junior. I cant believe hes graduating next year, i cant believe he's doing it without you. You know he was never good at the whole school thing. I still worry about him though, i think he's depressed because he misses you. Dads managing, working still all crazy hours but trying to switch to day time hours so he can be home more for brandon. I told him its what he needs. Moneys tight, and there is never any food. Im kinda upset at the fact i cant giggle with you, at the fact our house is no longer a mini mart. Cause theres barely even milk in the house. You know dad isnt a good house wife. Im trying to get him to give me some money to atleast get the essentials. We still have the house. I told dad i think we should down grade but he holds on to every memory in this house. I dont blame him though. This was and is our home. Its just money is so tight. I refuse to get close to dads side of the family. I know you'd probably argue a point but mom it wasnt fair. They never liked us til you got sick. And to me thats bullshit. Im growing closer to uncle bill and his family i know you'd approve. The whole family genuinely misses you. And uncle doug F him.... He didnt even come to your funeral. Im sorry but i will never talk to him, you and everyone is right for what they did and said about it. There is no excuse for not coming to your sisters funeral but coming to your mothers 3 months later and then have the audacity to talk shit in front of me about YOU. hell no. not in my book. MOM... you'd be so proud. I went back to school... For myself but also for you. but mainly for you... College aint easy ill tell you that much... Im planning on becoming a paramedic. you knew that was my dream, so i figured why not fufill it. Holidays are coming again... Im gonna miss your laughter at the tables, thats for sure. Im doing my best to hold up this family. Without you around i play so many roles but its okay every family needs there rock. Im just not use to being the rock. Sometimes i feel like i cant anymore but i have this picture of you on my dashboard and everytime i think about doing something crazy it reminds me why im here. I cant imagine my future without you... but i know your somewhere watching me. And even though you wont see brandon graduate or me get married. I promise ill save a seat for you. And i will tell my kids how amazing there grandmother was.

I promise to stay strong for you... if you promise to always stay with me.

I fear ill forget what you look like or how you smell... but how could i when your all i think about. i havnt even deleted your cell number out of my phone yet it says mom with your picture.

I love you... forever. You'll always be my number ONE mom.

love,

your number ONE daughter.

in honor of marc on his birthday

communityreply@lls.org — Sat, 27 Nov 2010 05:19:54 GMT

today would have been my nephew's 27th birthday. i think of him all the time but somehow when the clock struck midnight the pain got a little sharper. he was an amazing nephew and an amazing cousin to my kids. there is a big hole in our hearts. it has been a little over three months since we lost him and it seems like yesterday. i hope he is in a wonderful place. happy birthday marc -- we love you so much.

LTN Walk in Memory of Matthew

communityreply@lls.org — Wed, 03 Nov 2010 01:07:50 GMT

On October 24, 2010, Matthew's family participated in the Leukemia & Lymphoma Society's Light the Night Walk to honor and pay tribute to Matthew's life by raising money for research and treatment for those still fighting devastating blood cancers. Following is from our TEAM MATTHEW website:

"On June 30, 2009, my son Matthew lost his battle with leukemia at the age of 26. Over the course of 11 months, Matthew was hospitalized 12 times for a total of 141 days, received 11 rounds of chemotherapy and a bone marrow transplant. He lost over 60 pounds, battled numerous infections, heart and lung issues, edema and neuropathy--while enduring never-ending needle sticks, bone marrow biopsies, and a multitude of other invasive tests and procedures. Due to the effects of treatment, he struggled to eat, to walk, and at times even to breathe. Simple tasks, like opening a bottle of water or using his laptop and iPhone, became significant challenges.

In the face of these overwhelming obstacles and an increasingly grim prognosis, Matthew still laughed and joked, displayed kindness and compassion for others, and continued to make plans for the rest of his life. As his health, independence and, ultimately, his life were slowly taken from him, by his example Matthew taught us how to be strong, determined, and courageous. He taught us to have faith, hold onto hope and to never give up. He taught us how to live and love and to "be excellent to each other."

Here is a link to a video of photos from the walk:

http://animoto.com/play/z8EDiSmAZdRSRWqmgl1WkA

Prayers for healing to all!

looking for people who worked for U.P.R.R.

communityreply@lls.org — Thu, 07 Oct 2010 04:07:45 GMT

I at am trying to find employ friends Of Tom England, And / or have lived or died with A.M.L. and worked for Union Pacific Rail Road. Please leave a message and your number for Peggy England at 209-982-4928. or post your number for me and I will call you.

In Memory of my son

communityreply@lls.org — Thu, 23 Apr 2009 19:20:03 GMT

I am new to this board and I am really not sure if I will do this right. I lost my 20 year old son to Hodgkin's Lymphoma on December 28, 2008. It is so hard for me to even imagine him not being here with us. My heart aches and hurts so bad sometimes from it. He fought this for 18 months and went through surgeries and 6 different types of chemo. I also lost my mother back in 1972 to Leukemia and she was 33 years old. I am trying to understand why but it is very difficult.

Thanks for listening,

Theresa

In Memory of My Mother

communityreply@lls.org — Mon, 13 Sep 2010 22:53:38 GMT

My mother was diagnosed w/ ALL in april 2008

she passed away in September 2010

My dear mother went through a chemo course and recieved remission then 9 mo. later she relapsed..she wasn't able to regain her strength from the strong chemo but passed away cancer free

I miss her oh so dearly and she knew I loved her madly

She took thelord's name 2 days before she passed..those were her last words

My soul has never ever felt more at unrest now that she's gone

I will find her after I die..I know this