The Leukemia & Lymphoma Society Community : Discussion List - Coping with Treatment

Antidepressant eases chemo-related pain

communityreply@lls.org — Wed, 03 Apr 2013 13:21:06 GMT

Found this article and thought it'd share, especially for those of you dealing with peripheral nueropathy and other chemo related pains. Apparently there is an antidepressant that has proven effective in eliminating, or at least lessening, the pain.

http://www.natureworldnews.com/articles/1179/20130403/antidepressant-relieve-pain-induced-chemotherapy.htm

Oral mucositis

communityreply@lls.org — Fri, 18 Jan 2013 10:54:17 GMT

Since the fourth cycle of treatment, I've been battling to keep oral mucositis at bay... ulcers flare up at the tip and margins of the tongue... thanks to the effects from the mega doses of chemo. This typically occurs a week after treatment and goes away temporarily before the next round (so long as it is treated). I also experience 'scalloping of the tongue': when it becomes enlarged, pliable & indented by the molars; mucus acts like a coating of epoxy; hence, the tongue sticks to the teeth & any part of the mouth... it could always be worse. ;-)

No doubt I'm in good company with those who have & are dealing with different degrees of oral mucositis. I welcome hearing the experiences from others in dealing with oral mucositis & the meds used preventively & as a form of treatment. At the first hospital, in which I received DA R-EPOCH, they gave me Magic Mouthwash & MuGard. At the other hospital, in which I'm receiving R-IVAC, they give me Caphosol solution.

-DX: "Double-Hit" NHL | High Grade, Bulky Stage II
Translocations: BCL2 (common with DLBCL) & c-MYC (common with BL)
-Treatment: DA R-EPOCH & CNS Prophylaxis, Aug - Dec 2012 (6 cycles) + R-IVAC starting in Jan 2013

Rituxan

communityreply@lls.org — Sun, 25 Jul 2010 16:29:11 GMT

Mice Antibodies

blood transfusion

communityreply@lls.org — Tue, 10 Jul 2012 19:37:00 GMT

Anyone out there giving direct donation (their blood) for the kiddo in need of transfusion

Is Neupogen a good thing?

communityreply@lls.org — Fri, 15 Jun 2012 15:40:28 GMT

We are just finishing up a HiDAC consolidation round at The James in Columbus, Ohio. Our doctor is wanting her to do the neupogen shots in her stomach for 10 days to decrease the amount of time she is neutropenic. They are saying that is might decrease her neutropenia by 2 to 3 days. It seems a bit much for only 2 to 3 days. Is this really worth it or is this treatment overkill?

Neostar triple lumen catheter care

communityreply@lls.org — Sat, 23 Jun 2012 23:58:16 GMT

How do you maintain your neostar catheter? We are using the saline flush, heparin loc method at present. We have just switched hospitals and they want to start using the Tego hemodialysis connectors which elimates the use of heparin. Is anyone using this method? Stay strong...God Bless

trial drug TL32711 or SMAC it?

communityreply@lls.org — Mon, 07 May 2012 16:56:21 GMT

Has anyone experienced the trial drug TL32711 or SMAC as theya re calling it? If so, can you tell me what side effects you had or what it might of done for your wbc?

relapse

communityreply@lls.org — Sat, 14 Apr 2012 00:08:57 GMT

Hi everyone, It's been awhile since I last posted. I'm sorry more people r joining our family. I recently went to my onc and sorry to say I'm coming out of remission. I'ts been 5 yrs so I guess I can't complain too much,I was hoping to go a few more yrs. I was told that 80% of the people will relapse between 3 and 5 yrs so I'm on schedule. The problem is I have 51% lymphocites in my blood and my wbc is up to 7 from 4 which is growing every time I see him. Wants me back in 3 mths, he talked about a pill that will be out possibly in the future maybe this summer that has been working great. I'm not sure of the name but he said I can take it the rest of my life. I hope so because I don't see me doing chemo again. Well good luck to everyone I'll keep u posted.

New

communityreply@lls.org — Tue, 27 Mar 2012 18:46:40 GMT

just want to say hi. I am just beginning to enter chat rooms and the like. My husband is day 62 from his marrow translant for MDS and I am 4 treatments completed for NHL.Our journey is new but were doing well and have now just begun to resume our lives... So hi to everyone

Drug may be near for cancer's companion condition cachexia

communityreply@lls.org — Tue, 28 Feb 2012 16:32:34 GMT

Very cool if they reach fruition!!

Cachexia is the muscle wasting and weight loss that often accompany cancer's effects. Two potential treatments that may boost muscle strength are in Phase 3 clinical trials.

http://www.chicagotribune.com/health/la-he-cachexia-20120227,0,4246926.story

sprycel

communityreply@lls.org — Tue, 31 Jan 2012 21:09:04 GMT

ok peeps i was on sprycel 100s for 5 days was having really bad reaction severe headaches,nausea,and fatigue so bad i was in bed 20 hours of the day. also severe pains in the stomach.im suppose to use prilosec 40s for acid reflux which i cannot do cos of sprycel and tums is like eating candy.so they told me to use malox. oh well i go back to my onc in 2 days and we will see what to do wish me luck