The Leukemia & Lymphoma Society Community : Popular Threads - Light The Night

Balloons

communityreply@lls.org — Thu, 09 Apr 2009 14:24:51 GMT

There is a poll asking what color balloon I am, and I still can't find out where it tells what each color means. When I did a search on the word "balloon", nothing came up under light the night, so I'm clueless.

Need a Team Name

cinncy@netzero.net — Mon, 06 Apr 2009 17:51:01 GMT

Ok, this is stupid, but I really can't come up with a name for my team. I was thinking Steph's Survivors, but wanted to be sympathetic to the people who are missed. Any ideas? Told my husband we could be Steph's StormTroopers, but he thought that was dumb...lol. And he's the Star Wars fan.. I desparately need a name to start my team online and fundraising. Any help would be appreciated.

Cinncy

Michigan Fundraiser - June 16, 2008

taz8680@gmail.com — Wed, 04 Jun 2008 00:51:54 GMT

I am having a fundraiser at the Livonia Steak N Shake on Monday, June 16 from 11 am to 3 pm. Steak N Shake will donate 20% of all sales during this time to the Leukemia & Lymphoma Society. It is valid only at the Livonia on this day only. A special voucher is needed. More details and the voucher can be found on my donation page http://www.active.com/donate/ltnMadiso/2339_taz8680. Please encourage all you know to attend.

thanks,

alma.

Question about balloons-which one do I carry?

communityreply@lls.org — Wed, 26 Aug 2009 01:11:07 GMT

Hi Everyone,

I have a question about balloons. I know that white balloons are for survivors, gold balloons are for people that we have lost and for those walking in memory of someone and red ones are for supporters. I am going to walk in my first Light the Night walk in Spetember. I am confused about which color of balloon to carry. I am currently done with treatment ( but may not be done for sure it depends on the study I am participating in and shold find out anytime) so what color of balloon do I carry being a current patient. I also consider myself a survior after everything I have gone through. However, according to LLS which color of balloon is appropriate for me to carry? Or is it up to me to make this decision? What have you all done?

When is bank night fot the 17 October

communityreply@lls.org — Mon, 05 Oct 2009 16:15:46 GMT

When is bank night for the 17 October

Anyone ever use this t shirt company?

bebe19401@comcast.net — Sat, 26 Jul 2008 15:52:26 GMT

Hi, I'm new to the board and my daughter just registered our team for the Walk in Sept (Montgomery County PA)

Since our team is walking in my honor (I am currently on chemo for stage IV NHL) and I wasn't going to be directly involved with the fundraising,

I wanted to help by getting our team t-shirts made.

I was looking online for a t-shirt company and found this one. http://llsteamshirts.compet.com/

Their prices are really great but I wanted to be sure they were legit. Has anyone here heard of them? Thanks, Liz

Fundraising ideas (?)

deanna815@verizon.net — Mon, 30 Jun 2008 19:45:25 GMT

Hello Everyone, Let me introduce myself..I'm Deanna Brown from Laurel, Delaware. I am involved with the L&LS Light the Night Walk in memory of my wonderful husband and best friend, Gerald "Gump" Brown. My husband lost his battle to Leukemia in April 2007; however, our family and friends are continuing the fight he started! Last year was our first year for LTN. Our TEAM GUMP consist of family and friends that wanted to keep Gerry's spirit alive and was about 30 members strong for the Walk. Also we were the #1 fundraising Team for the Rehoboth Beach, DE Walk. <p>

Our biggest fundraiser for the TEAM itself was the sale of T-shirts that have our TEAM GUMP logo on the back, and the LTN logo on the front chest. The logo was created by Cory Atkins, who started the TEAM in memory of Gerry, and in honor of his sister Britney, who is a NHL survivor. The shirts were so popular, we sold out twice, and had people begging for more. TEAM GUMP t-shirt were sold for $20 each, and ALL the proceeds went towards our teams total goal. This year we are going to try to round up some sponsorship money, and include our sponsors names on the front... therefore, we can purchase them at little or no expense, and hopefully we can make alot more money$!$!<p>

We also sold the paper balloons and wrist bands at our family gift shop. Some TEAM members set out collection jars at their church and work places, every single cent makes a difference. We are currently working on the possibility of a dinner at a local restaurant, where we receive a certain percentage of the nights profits, this lets community members get involved and enjoy the meal as well. Some other ideas are car washes, garage sales, and a Beef n' Beer Benefit night at the local volunteer firehouse, in which my husband was President of when he relapsed in 2006. If I come up with more ideas, I will certainly share them on this blog page. <p>

Good luck everyone, and THANK YOU for what you do!!!!

I cant attach a picture to this post, so I am including our MySpace page and my personal blog so you can see our TEAM GUMP logo....

TEAM GUMP

Deanna's blog

Just made a team-- have lots of questions!!!

communityreply@lls.org — Mon, 21 Sep 2009 13:17:16 GMT

I just started making a team for my husband, Jayson, who is NHL survivor! I only wish we would have started sooner... since the walk is just about a month away we have lots of organizing to do and since we signed up so late, all the kick off meetings took place, so I think we could use some help. So as I understand it, whoever on my team raises a $100 will get a shirt. Does everyone get to carry a balloon or to carry one you have to raise $100? Also, kids are allowed to walk, what about baby srtollers? I have a few friends with small children. O- and a banner for our team, How do we go about getting one? And the day of the walk I'm sure I have to sign in some where, do I need to be really early or can do it the day before? And also, fundraising ideas... I welcome any, so please anyone with a minute to give me some advice or tips or answer some of my questions, Our team would greatly appreciate it, Thanks so Much!!!

First time attending light the night

communityreply@lls.org — Sun, 26 Jul 2009 23:40:29 GMT

Hi Everyone,

I am thinking about attending my first light the night walk with my mom. What exactly happens? What can I expect? Do you think it is worth the experience of going? I am shy and find it hard to do big group things. My mom and I are going to attend an informational meeting on the local Light the Night Walk in my area. What kind of experiences have you had all with the Light the Night walk?

is anyone else

nicole@nixpixstudio.net — Tue, 09 Sep 2008 20:13:57 GMT

finding it difficult to raise funds? Fall seems to bring on massive assault of fundraising efforts. Schools, churches, daycares, and many many charities all seem to be asking for donations. I can't tell you how many calls I have made to local businesses in search of sponsorship only to hear "I just donated to such-and-such." Can anyone give me pointers? Even my attempts to donate profits of novelty item sales isn't producing. ACK! How do you convey the importance of this research??

HELP

Need ideas for using facebook better

communityreply@lls.org — Tue, 11 Aug 2009 14:04:27 GMT

All,

I have alot of enthusiasm but not alot of facebook experience.

My facebook friend list is slowly growing and I want to share my enthusiasm for Light The Night.

In addition to posting about our local upcoming event, does anyone have examples of how else I could use facebook. Especially needed are step by step instructions for how to make it look nice.

I wish there was some widget to show my teams goal and total on my facebook page or some way that friends could "click" a link on my page to go to my LTN page where they could sign up to donate. Also, I like the buttons but wasn't sure how to add them or if they can be set up as a clickable link to my contribution page.

Thanks in advance for any help or further ideas.

John

New Facebook Badges and Pins to Show your Support!

christine.lazzari@lls.org — Wed, 02 Jul 2008 20:38:38 GMT

Add these to your Facebook profile to show your network of friends that you're supporting The Leukemia & Lyphoma Society by participating in The Light The Night Walk! Read the latest Light The Night Blog Post for more information and instructions for using these!

light the night walk info

skinner4@pstel.net — Fri, 24 Oct 2008 04:48:35 GMT

has the atlanta or the augusta (light the night) happen yet?

View the 2009 Light The Night Walk Video

todd.whitley@lls.org — Tue, 21 Apr 2009 15:21:26 GMT

Find out more about The Light The Night Walk by viewing our video on YouTube!

Did you participate in last year's walk? Post the video to your site or social networking profile and share this with your friends!

hello all. just want to learn more about light night walk...

ignacio.villas@djj.virginia.gov — Sun, 25 Nov 2007 22:36:42 GMT

hello all. just want to learn more about light night walk...

Light the Night in Palm Springs and the greater Coachella Valley in Southern California

boz@netv.com — Sun, 17 Aug 2008 19:29:45 GMT

I would really like to help to launch a Light the Night event for Palm Springs and the greater Coachella Valley in Southern California.

It would be very exciting to have this event in the Palm Springs area, as there are so many people with lymphoma and leukemia in this area.

If you are living in this area, I would love to hear from you. Anissa Ayala is the Director of Development for LLS in this area and I volunteered to help in any way possible.

Light the Night - and save at the pump!

todd.whitley@lls.org — Fri, 17 Jul 2009 13:39:13 GMT

Ever popular, our gas promo for Light the Night is back....read more about it on this recent @LLS Blog post: Raise Funds for Cancer Research and Get FREE Gas!@LLS Blog post!

Comedy Night Fundraiser

stang1969@verizon.net — Tue, 02 Sep 2008 12:27:49 GMT

Hello,

I am doing a fundraiser for the Light the Night Walk in Boston, MA and I hope some out there are in the area and would please pass this on to as many as you can so I can make this a success!

I am doing the fundraiser at Dick Doherty's Comedy Club for the Leukemia and

Lymphoma Society Wednesday September 10th at 8:30pm in Boston at the Remington Comedy Club Location

proceeds will be going to the Leukemia and Lymphoma Society's Annual Light The Night Walk

Tickets are 20.00 a piece and I really want to sell out this event.

Thanks Mia

Light the Night and bone marrow donors

jane_moya@freddiemac.com — Fri, 14 Dec 2007 02:08:29 GMT

As a leukemia survivor, I was really happy to again participate in the DC Light the Night walk. The gold balloons added this year were particularly touching. I ran in to several people I'd met when I was sick. It's a great event.

What was a little disappointing: the Walk included no mention of the need for bone marrow/stem cell donors, and there is no coordination with the National Marrow Donor program folks, it appears. I am lucky enough to have one or two potential donors, but others are not so lucky and end up dying. I met a great little girl on the Walk who'd found a donor, had a transplant and is doing well years later.

it's surprising to me how many people involved in the walks/this issue don't know much about the need for bone marrow/stem cell donors. I wore a t-shirt promoting this, and had a number of people come up to me and talk about it. I recognize that reserach and patient services is the main mission of the Society, and they don't want to have mission creep. HOWEVER, I really feel at the Walk at least there should be SOME mention of the need for donors, or at least a booth or mention in the program...there should be SOME coordination with the National Marrow Donor folks. After all, what better service to patients as part of the Society's mission than helping to promote, in a small way, the need for donors---to an audience that would seem to care about this issue. At the very least, during November's National Marrow Awareness month the Society should encourage folks to sign up on their website.

I met a woman from California at the walk whose sister had died ---didn't have a donor --and she told me both orgs had asssured here there would be someone at a booth registering donors or providing info, but there wasn't anyone. She said the California LIGHT THE nIGHT walks she'd been on were much better about working together to help patients and mentioning the need for donors. She also said apparently in DC there was someone from the Donor program there last year, although no one knew b/c they were in a building and no one could find them. I was on the walk last year and had no idea there was anyone there.

This silo mentality hurts patients I believe.

Why I Participate in Light the Night!

swatts1120@aol.com — Tue, 13 May 2008 03:05:40 GMT

Why I participate in Light the Night Walk!

I was diagnosed with blood cancer in 1998 and have volunteered with the National Capital Area chapter since 2000. The Society was one of the first places that I called for information about my disease and their patient services manager immediately sent me a package in the mail with brochures and materials. Once I received the documents, the patient services manager followed up with with me on the phone and answered my questions. The Society has always served as a place for me to seek information. I have attended many of their patient education program, listened to the teleconferences and participated health fairs. I can say that they extend their services to all people, which is why I continue to support their efforts.

In 2004, I participated in the Washington, DC Light the Night Walk and raised over $4,000. It was a family friendly event and very moving to see all of the survivors, friends, and family members. As I prepare to participate in the event this year, and mark my 10 years as a survivor of multiple myeloma, I know that the funds that I raise will help the Society with their research and programs. The survival rate for multiple myeloma is only 34% and the funds raised enable survivors to seek new treatments, drugs, and access to clinical trials. There are over 11 million cancer survivors and each year more than one million people are diagnosed with cancer. Every survivor's journey is different, however hope keeps us alive.

$10,000 Wedding-Fundraiser

christine.lazzari@lls.org — Thu, 17 Jul 2008 14:29:17 GMT

Hi All -

Just wanted to share this sweet story about Dianne & Chuck posted on the Light The Night Blog. Dianne was diagnosed with Lymphoma recently, but is now in 100% remission. She and her sweetheart Chuck are to be married this September. They're turning the wedding recepton into a fundraising pre-party for the Light The Night Walk and having their 60 guests join them in the walk the following day as "Team I Do." It's beautiful.

Light the Night Surrey - Oct 4/08 - What time?

mytime2002@hotmail.com — Sat, 04 Oct 2008 01:31:55 GMT

Does anyone know what time we are supposed to be in Cloverdale for the walk tomorrow? The website says a 5:30 start but does that mean the walk or do we have to register? This is my first walk and I would hate to be late.

Thank you

Diane

TNT?

nabinga@gmail.com — Tue, 11 Dec 2007 22:24:09 GMT

I live in Savannah Ga area (Tybee Island). Anyone in training? How can I join?

Custom Photo Buttons/Badges

nicole@nixpixstudio.net — Thu, 04 Sep 2008 15:00:25 GMT

Show off your loved ones and those you support with custom photo buttons/badges.

Photo Buttons are 100 % customizable and extremely versatile and can be made from your photos or graphics.

Photo/graphic is pressed onto a 3 1/2 inch metal-pin back button and protected with a mylar cover, just like the ones you buy at the store. Words/lettering can also be added.

Buttons are $ 5.00 each and 50% of all sales will be donated to the Leukemia and Lymphoma Society, shipping to continental US is free.

Please email photos or graphics to nicole@nixpixstudio.net specify quantities, sentiment, and ship to address. Payment through paypal.

Track my donations @ my donation page .

Houston area walkers, I look forward to seeing you on October 11th at Greenway Discovery Park!!

Thank you all for your support!! ~Nicole

http://www.nixpixstudio.net/

Dates and Locations -- 2009

communityreply@lls.org — Tue, 21 Apr 2009 16:11:31 GMT

Where can I find out when and where Light the Night events will be found around the US throughout this year?

Just wondering

communityreply@lls.org — Wed, 25 Jun 2008 16:22:42 GMT

Hi. Just wondering a few things. Last year was my first time

participating as a team captian for LIght The Night. Tonight is the

Metro Detroit Kickoff Celebration.

I am an just shy of surviving

for 11 years myself NHL. As well as lost two people dear to me one to

CLL and another recently to NHL. So I am well aware of the fight and

how many fight these diseases today.

I guess I am looking for

Ideas. I have put cans out and about to raise funds. Which are doing

okay. But today I am going to purpose a few new thoughts. With

Michigans Economy being really bad right now.

I gues I am open

to new ideas to go out and fundraise. I am going out today to talk to

people in the community about things I plan on doing.

I guess I

am really wondering about those who are fundraising right now...How

they are doing and how its going as well as what they are doing to

bring in funds.

BTW. Thanks Everyone for getting out there and

doing the job. It really helps me to know many are fighting to those

patients like me and my family. To me being relentless means not only

getting out there walking the walk but doing something about it.

Thanks

Hope

Pittsburgh Pa

lml403@yahoo.com — Mon, 04 Feb 2008 19:39:56 GMT

Who was at th ePittsburgh walk or is planning on doing it again next year? I have done the walk for several years now and I always walk with the team form Children's hospital. I carry a white baloon

what is the address for the richmond virginia walk?

communityreply@lls.org — Fri, 02 Oct 2009 00:29:41 GMT

what is the address for the richmond virginia light the night walk?

Next Light the Night

vcanosa@optonline.net — Sat, 08 Mar 2008 19:48:57 GMT

Does anybody know when the next light the night is on Long Island New York?