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    <title>The Leukemia &amp; Lymphoma Society Community: Message List - So what have we all been up to?</title>
    <link>http://community.lls.org/community/bloodcancer/livingwith/cml?view=discussions</link>
    <description>Most recent forum messages</description>
    <language>en</language>
    <pubDate>Mon, 21 Feb 2011 18:10:55 GMT</pubDate>
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    <dc:date>2011-02-21T18:10:55Z</dc:date>
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    <item>
      <title>Re: So what have we all been up to?</title>
      <link>http://community.lls.org/message/93146?tstart=0#93146</link>
      <description>&lt;!-- [DocumentBodyStart:a17adf69-d895-4006-94af-64d6a944950c] --&gt;&lt;div class="jive-rendered-content"&gt;&lt;p&gt;I've been off the forum for a while and it's been a blast to read the posts today.&amp;#160; Great idea, Phil.&amp;#160; So is there a video of your dance'?&lt;/p&gt;&lt;p style="min-height: 8pt; height: 8pt; padding: 0px;"&gt;&amp;#160;&lt;/p&gt;&lt;p&gt;Best:&amp;#160; I am officially retiring June 30.&amp;#160; But will be in England again the last two weeks of June for work.&lt;/p&gt;&lt;p style="min-height: 8pt; height: 8pt; padding: 0px;"&gt;&amp;#160;&lt;/p&gt;&lt;p&gt;Worst:&amp;#160; Two close friends died within a day of each other last week.&lt;/p&gt;&lt;p style="min-height: 8pt; height: 8pt; padding: 0px;"&gt;&amp;#160;&lt;/p&gt;&lt;p&gt;Silliest:&amp;#160; Staying up late to watch Willie Nelson and Asleep at the Wheel on Austin City Limits last night.&amp;#160; It was good, though.&lt;/p&gt;&lt;/div&gt;&lt;!-- [DocumentBodyEnd:a17adf69-d895-4006-94af-64d6a944950c] --&gt;</description>
      <pubDate>Mon, 21 Feb 2011 18:10:55 GMT</pubDate>
      <author>communityreply@lls.org</author>
      <guid>http://community.lls.org/message/93146?tstart=0#93146</guid>
      <dc:date>2011-02-21T18:10:55Z</dc:date>
      <clearspace:dateToText>2 years, 3 months ago</clearspace:dateToText>
      <clearspace:objectType>0</clearspace:objectType>
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    <item>
      <title>Re: So what have we all been up to?</title>
      <link>http://community.lls.org/message/93130?tstart=0#93130</link>
      <description>&lt;!-- [DocumentBodyStart:f5e278d5-7c0b-4ad7-ba6b-895f890f3218] --&gt;&lt;div class="jive-rendered-content"&gt;&lt;p&gt; My sister has the wii fit and she loves it.&amp;#160; She's taken off a few pounds (not that she's all that heavy).&lt;/p&gt;&lt;p style="min-height: 8pt; height: 8pt; padding: 0px;"&gt;&amp;#160;&lt;/p&gt;&lt;p&gt;Virtual women must be a guy kind of thing.&amp;#160; My husband insists on having the sultry Brit female voice on our gps.&amp;#160; He'll take directions from her before he will from me.&amp;#160; He calls her Jill. &lt;/p&gt;&lt;p style="min-height: 8pt; height: 8pt; padding: 0px;"&gt;&amp;#160;&lt;/p&gt;&lt;p&gt;Marnie&lt;/p&gt;&lt;/div&gt;&lt;!-- [DocumentBodyEnd:f5e278d5-7c0b-4ad7-ba6b-895f890f3218] --&gt;</description>
      <pubDate>Mon, 21 Feb 2011 17:36:21 GMT</pubDate>
      <author>communityreply@lls.org</author>
      <guid>http://community.lls.org/message/93130?tstart=0#93130</guid>
      <dc:date>2011-02-21T17:36:21Z</dc:date>
      <clearspace:dateToText>2 years, 3 months ago</clearspace:dateToText>
      <clearspace:objectType>0</clearspace:objectType>
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    <item>
      <title>Re: So what have we all been up to?</title>
      <link>http://community.lls.org/message/93128?tstart=0#93128</link>
      <description>&lt;!-- [DocumentBodyStart:3654ee22-55e1-486c-8a0e-fa18a802d7cd] --&gt;&lt;div class="jive-rendered-content"&gt;&lt;p&gt;Hilarious, I actually laughed out loud (but refuse to use that stupid abbreviation).&amp;#160; Thanks Phil!&lt;/p&gt;&lt;/div&gt;&lt;!-- [DocumentBodyEnd:3654ee22-55e1-486c-8a0e-fa18a802d7cd] --&gt;</description>
      <pubDate>Mon, 21 Feb 2011 17:33:23 GMT</pubDate>
      <author>communityreply@lls.org</author>
      <guid>http://community.lls.org/message/93128?tstart=0#93128</guid>
      <dc:date>2011-02-21T17:33:23Z</dc:date>
      <clearspace:dateToText>2 years, 3 months ago</clearspace:dateToText>
      <clearspace:objectType>0</clearspace:objectType>
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    <item>
      <title>Re: So what have we all been up to?</title>
      <link>http://community.lls.org/message/93120?tstart=0#93120</link>
      <description>&lt;!-- [DocumentBodyStart:ddc7da0b-8cf4-4c90-9100-1b52503d0086] --&gt;&lt;div class="jive-rendered-content"&gt;&lt;p&gt;yeah that's what you say Phil&amp;#160; - &lt;/p&gt;&lt;p style="min-height: 8pt; height: 8pt; padding: 0px;"&gt;&amp;#160;&lt;/p&gt;&lt;p&gt;actually you are right about the wii - I really should get the board out - I also like playing the grand slam tennis game disc. Still it will have to wait&amp;#160; off to York tomorrow. Local hospital blood draw and possibly PCR first thing. Then railway musuem for the lads and university for me and daughter. Having a look at one of her back up choices. &lt;/p&gt;&lt;p style="min-height: 8pt; height: 8pt; padding: 0px;"&gt;&amp;#160;&lt;/p&gt;&lt;p&gt;Marian&lt;/p&gt;&lt;/div&gt;&lt;!-- [DocumentBodyEnd:ddc7da0b-8cf4-4c90-9100-1b52503d0086] --&gt;</description>
      <pubDate>Mon, 21 Feb 2011 16:26:59 GMT</pubDate>
      <author>communityreply@lls.org</author>
      <guid>http://community.lls.org/message/93120?tstart=0#93120</guid>
      <dc:date>2011-02-21T16:26:59Z</dc:date>
      <clearspace:dateToText>2 years, 3 months ago</clearspace:dateToText>
      <clearspace:objectType>0</clearspace:objectType>
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    <item>
      <title>Re: So what have we all been up to?</title>
      <link>http://community.lls.org/message/93119?tstart=0#93119</link>
      <description>&lt;!-- [DocumentBodyStart:fa126b68-ca77-4f53-a219-005dc76e8468] --&gt;&lt;div class="jive-rendered-content"&gt;&lt;p&gt;Hi Pat&lt;/p&gt;&lt;p style="min-height: 8pt; height: 8pt; padding: 0px;"&gt;&amp;#160;&lt;/p&gt;&lt;p&gt;If you've had it a few years you probably only have the original Wii Fit disc rather than the Wii Fit Plus they sell it with now.&amp;#160; I have to say I probably wouldn't be using it so much if I only had the original.&amp;#160; The two big differences (as I understand it) are:&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Extra Games and Exercises&lt;/strong&gt;&lt;/p&gt;&lt;p&gt;I believe the 15 games in 'Training Plus' are all new, and these are generally much more fun and 'game' like than the original balance games.&amp;#160; The flying chicken game is an excellent spectator sport (watching the player rather than the screen), the obstacle course is highly addictive and a good way to burn a lot of energy and the snowball fight is a somewhat more morally acceptable take on the idea of a irst person shooter for anyone who doesn't like the idea of their kids slaughtering hundreds of people with a virtual Uzi. There are also a few new yoga poses and muscle exercises.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;My Routine&lt;/strong&gt;&lt;/p&gt;&lt;p&gt;You can put together a bunch of the yoga and muscle exercises into a personalised routine lasting up to 60 minutes.&amp;#160; The downside is you don't get scores or to vary the reps.&amp;#160; The upside is you get a much more continuous workout without being told incessantly to practise your yoga every day.&lt;/p&gt;&lt;p style="min-height: 8pt; height: 8pt; padding: 0px;"&gt;&amp;#160;&lt;/p&gt;&lt;p&gt;I should also point out (before Trey says anything) that I was referring to the &lt;em&gt;female &lt;/em&gt;virtual trainer.&lt;/p&gt;&lt;/div&gt;&lt;!-- [DocumentBodyEnd:fa126b68-ca77-4f53-a219-005dc76e8468] --&gt;</description>
      <pubDate>Mon, 21 Feb 2011 16:20:09 GMT</pubDate>
      <author>communityreply@lls.org</author>
      <guid>http://community.lls.org/message/93119?tstart=0#93119</guid>
      <dc:date>2011-02-21T16:20:09Z</dc:date>
      <clearspace:dateToText>2 years, 3 months ago</clearspace:dateToText>
      <clearspace:replyCount>3</clearspace:replyCount>
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    <item>
      <title>Re: So what have we all been up to?</title>
      <link>http://community.lls.org/message/93104?tstart=0#93104</link>
      <description>&lt;!-- [DocumentBodyStart:22c5447d-c379-4225-ae0e-dd9e007388ba] --&gt;&lt;div class="jive-rendered-content"&gt;&lt;p&gt;Hmm, I have Wii Fit - have had for about 3 years...right now I use my Wii mostly to watch Netflix and play the occasional game - this could be part of the problem. I liked ski jumping, although I tended to resemble Eddie the Eagle, and the slalom. Guess I'll have to get the board back out again. Thanks.&lt;/p&gt;&lt;p style="min-height: 8pt; height: 8pt; padding: 0px;"&gt;&amp;#160;&lt;/p&gt;&lt;p&gt;Pat&lt;/p&gt;&lt;/div&gt;&lt;!-- [DocumentBodyEnd:22c5447d-c379-4225-ae0e-dd9e007388ba] --&gt;</description>
      <pubDate>Mon, 21 Feb 2011 14:13:36 GMT</pubDate>
      <author>communityreply@lls.org</author>
      <guid>http://community.lls.org/message/93104?tstart=0#93104</guid>
      <dc:date>2011-02-21T14:13:36Z</dc:date>
      <clearspace:dateToText>2 years, 3 months ago</clearspace:dateToText>
      <clearspace:replyCount>4</clearspace:replyCount>
      <clearspace:objectType>0</clearspace:objectType>
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    <item>
      <title>Re: So what have we all been up to?</title>
      <link>http://community.lls.org/message/93098?tstart=0#93098</link>
      <description>&lt;!-- [DocumentBodyStart:663a2c5b-d74e-4127-9cc5-bcc08e640528] --&gt;&lt;div class="jive-rendered-content"&gt;&lt;p&gt;I did indeed recommend the Wii fit.&amp;#160; It's never going to turn anyone into an elite athlete, but, judging by the way I sank like a rock when I took the kids to the swimming pool yesterday, it's definitely reduced my body fat percentage since Xmas.&amp;#160; They cost a few hundred dollars byt the time you've got the console, board, controllers and software, but compared to a year's gym membership it's a bargain (certainly at UK gym prices)&lt;/p&gt;&lt;p&gt;I like the fact that I can choose what to do depending on how I feel, so on a good day I can work up a real sweat with some of the more aerobic exercises, but if I'm feeling rough I can just do some gentle yoga and maybe a snowball fight or two.&amp;#160; The virtual trainer's quite fanciable too!&lt;/p&gt;&lt;/div&gt;&lt;!-- [DocumentBodyEnd:663a2c5b-d74e-4127-9cc5-bcc08e640528] --&gt;</description>
      <pubDate>Mon, 21 Feb 2011 13:13:25 GMT</pubDate>
      <author>communityreply@lls.org</author>
      <guid>http://community.lls.org/message/93098?tstart=0#93098</guid>
      <dc:date>2011-02-21T13:13:25Z</dc:date>
      <clearspace:dateToText>2 years, 3 months ago</clearspace:dateToText>
      <clearspace:replyCount>5</clearspace:replyCount>
      <clearspace:objectType>0</clearspace:objectType>
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    <item>
      <title>Re: So what have we all been up to?</title>
      <link>http://community.lls.org/message/92488?tstart=0#92488</link>
      <description>&lt;!-- [DocumentBodyStart:9bf20368-eff8-4b3c-9c88-4498752185f9] --&gt;&lt;div class="jive-rendered-content"&gt;&lt;p&gt; Hi Pat,&lt;/p&gt;&lt;p&gt;Not an elite athlete, though my blood pressure has dropped since I've been on Glivec, it is under the normal 120/80 range. Looked it up to see if it was an issue and apart from feeling light headed every so often, elite athletes have low blood pressure LOL.&lt;/p&gt;&lt;p&gt;I think with exercise, you have to find something you like doing to maintain it. I used to do Latin American dancing, but can't afford it at the moment, and haven't been to a class for about a year. So I've gone back to walking, doing floor exercises (crunches, hand weights etc) and will start yoga in a couple of weeks. Eventually I'd like to go back to dancing as it is something I really enjoy. It was the crunches and leg squats that reminded me I hadn't done anything for a while.&lt;/p&gt;&lt;p&gt;Phil mentioned that he got a Wii Fit and it was lots of fun.&lt;/p&gt;&lt;/div&gt;&lt;!-- [DocumentBodyEnd:9bf20368-eff8-4b3c-9c88-4498752185f9] --&gt;</description>
      <pubDate>Wed, 16 Feb 2011 23:21:00 GMT</pubDate>
      <author>communityreply@lls.org</author>
      <guid>http://community.lls.org/message/92488?tstart=0#92488</guid>
      <dc:date>2011-02-16T23:21:00Z</dc:date>
      <clearspace:dateToText>2 years, 3 months ago</clearspace:dateToText>
      <clearspace:replyCount>6</clearspace:replyCount>
      <clearspace:objectType>0</clearspace:objectType>
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    <item>
      <title>Re: So what have we all been up to?</title>
      <link>http://community.lls.org/message/92477?tstart=0#92477</link>
      <description>&lt;!-- [DocumentBodyStart:bfbf4fc9-0737-4d41-845d-2b1d3d48ec94] --&gt;&lt;div class="jive-rendered-content"&gt;&lt;p&gt;What a great idea Phil.&amp;#160; I get anxiety attacks every once in a while (like today).&amp;#160; I think as a CML patient, I shouldn't feel so happy, active, normal, etc.&amp;#160; I guess sometimes I need permission to enjoy life.&amp;#160; So I come to the board, read the posts and realize we are all chugging along with life (the good, the bad and the funny).&amp;#160; Reading this post especially made my day.&amp;#160; Thanks everyone.&lt;/p&gt;&lt;p style="min-height: 8pt; height: 8pt; padding: 0px;"&gt;&amp;#160;&lt;/p&gt;&lt;p&gt;Best:&amp;#160; As a family, we have been skiing and are about to take our first ski trip.&amp;#160; My kids learned this season.&amp;#160; My husband and I came back to it after a long, long break.&lt;/p&gt;&lt;p style="min-height: 8pt; height: 8pt; padding: 0px;"&gt;&amp;#160;&lt;/p&gt;&lt;p&gt;Worst:&amp;#160; A friend of mine "unfriended" me because I haven't been giving her enough attention since I was diagnosed.&lt;/p&gt;&lt;p style="min-height: 8pt; height: 8pt; padding: 0px;"&gt;&amp;#160;&lt;/p&gt;&lt;p&gt;Silliest:&amp;#160; Trying to dance.&amp;#160; Enough said.&lt;/p&gt;&lt;/div&gt;&lt;!-- [DocumentBodyEnd:bfbf4fc9-0737-4d41-845d-2b1d3d48ec94] --&gt;</description>
      <pubDate>Wed, 16 Feb 2011 20:55:12 GMT</pubDate>
      <author>communityreply@lls.org</author>
      <guid>http://community.lls.org/message/92477?tstart=0#92477</guid>
      <dc:date>2011-02-16T20:55:12Z</dc:date>
      <clearspace:dateToText>2 years, 3 months ago</clearspace:dateToText>
      <clearspace:objectType>0</clearspace:objectType>
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    <item>
      <title>Re: So what have we all been up to?</title>
      <link>http://community.lls.org/message/92440?tstart=0#92440</link>
      <description>&lt;!-- [DocumentBodyStart:6b720c72-1e7c-4304-9ca5-16503ef7d004] --&gt;&lt;div class="jive-rendered-content"&gt;&lt;p&gt;Here is hoping that the best gets better, the silly gets sillier and the worst goes away for everyone.&lt;/p&gt;&lt;p style="min-height: 8pt; height: 8pt; padding: 0px;"&gt;&amp;#160;&lt;/p&gt;&lt;p&gt;BEST:&amp;#160; So many I cannot count.&amp;#160; Now it is the little things that invoke absolute joy, like being able to take my kids out and breathing freely.&amp;#160; But a big thing is that we booked our fight to Japan and we will visit one of my best friends and her family.&amp;#160; It has been my dream that our children meet and that I can share my home away from home with my husband.&amp;#160; I'll drag the fam to my old haunts when I was a youngin'.&lt;/p&gt;&lt;p style="min-height: 8pt; height: 8pt; padding: 0px;"&gt;&amp;#160;&lt;/p&gt;&lt;p&gt;WORST:&amp;#160; Hearing about an old friend's death.&amp;#160; Lately, I have been feeling sad and mourning.&amp;#160; Plan to travel to visit her grave with friends in Japan.&amp;#160; My anemia is getting worse again.&amp;#160; WBC also taking a dive.&lt;/p&gt;&lt;p style="min-height: 8pt; height: 8pt; padding: 0px;"&gt;&amp;#160;&lt;/p&gt;&lt;p&gt;SILLIEST:&amp;#160; Well, it is non-stop with two little toddlers.&amp;#160; This is a little old, but remembering it always gives me a chuckle.&amp;#160; My 3-year-old told me after eating some sweets, "Mama, I think I am a junkie."&amp;#160; (as in "junk food junkie", which I sometimes call him).&lt;/p&gt;&lt;p style="min-height: 8pt; height: 8pt; padding: 0px;"&gt;&amp;#160;&lt;/p&gt;&lt;p&gt;Teds&amp;#160;&amp;#160; &lt;/p&gt;&lt;/div&gt;&lt;!-- [DocumentBodyEnd:6b720c72-1e7c-4304-9ca5-16503ef7d004] --&gt;</description>
      <pubDate>Wed, 16 Feb 2011 17:23:33 GMT</pubDate>
      <author>communityreply@lls.org</author>
      <guid>http://community.lls.org/message/92440?tstart=0#92440</guid>
      <dc:date>2011-02-16T17:23:33Z</dc:date>
      <clearspace:dateToText>2 years, 3 months ago</clearspace:dateToText>
      <clearspace:objectType>0</clearspace:objectType>
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