The Leukemia & Lymphoma Society Community: Message List

Re: LIVING WITH . . . MPN'S (PV, ET, MF) -- 2012

communityreply@lls.org — Thu, 23 May 2013 14:57:30 GMT

Hello Pegetha: Yes it is beautiful here and I also am a wildlife watcher. On our way in yesterday we saw 3 bald eagles, a grizzly in the snake river and some elk. It's so beautiful here, I just love it!!! We are on the backside of Yellowstone, so no cars, people or outside city noises Woo Hoo. I'll be taking lots of pictures.

Patti

Re: LIVING WITH . . . MPN'S (PV, ET, MF) -- 2012

communityreply@lls.org — Thu, 23 May 2013 08:59:19 GMT

Hi everyone! We made it back to Wyoming yesterday afternoon, and it's so good to be back again. We will have internet for a couple days, then wont have it till around the first of June. Things are a lot slower here as we are way out in the mountains. Anyway, Just wanted to let you know what's going on. I think of you all everyday, and always hope everyone is alright.

Patti Oregon/Wyoming

Re: LIVING WITH . . . MPN'S (PV, ET, MF) -- 2012

communityreply@lls.org — Mon, 20 May 2013 11:30:32 GMT

Hello Everyone! I agree with Pegetha and Dee that even though we don;t always post right away, we are still all here!!!

I'm leaving for Wyoming today, and will be there till the end of September. Should be online on the way, then will have internet in the cabin by June 1st. I'll be thinking of you all while we are traveling.

Patti

Re: LIVING WITH . . . MPN'S (PV, ET, MF) -- 2012

communityreply@lls.org — Sun, 12 May 2013 08:17:43 GMT

HAPPY MOTHER'S DAY !!!!! HOPE EVERYONE HAS A GREAT RELAXING DAY. i'M THINKING ABOUT YOU ALL.

PATTI

Re: LIVING WITH . . . MPN'S (PV, ET, MF) -- 2012

communityreply@lls.org — Fri, 10 May 2013 12:10:06 GMT

Sheriff Dee!!!!! it's Dr's like this that should be ashamed! If Dr. Mesa knew this was happening, he'd be furious, as am I. I understand what a hassle finding a MPN specialist is, and I know you've been through so much already, BUT, it's time to go to the Dr. Mesa gave you. I don't want you to wait till the end of summer to get your labs done right, and ferritin checked. I would report this Dr to Mesa, or somewhere he can be held accountable for not taking care of you. Sorry, I'm so angry with this kind of treatment!!!!! I care, and only want the best for you and us all.

Big Hug's, Patti

Re: LIVING WITH . . . MPN'S (PV, ET, MF) -- 2012

communityreply@lls.org — Fri, 03 May 2013 11:26:43 GMT

Dee: HAPPY BIRTHDAY TO YOU!!!!!!!!!!!

and thank you for the kindness and care.

Patti

Re: LIVING WITH . . . MPN'S (PV, ET, MF) -- 2012

communityreply@lls.org — Wed, 24 Apr 2013 14:57:24 GMT

Sarah::: HAPPY BIRTHDAY TO YOU!!!!!

Do something nice for yourself today!!!

Love & Hug's, Patti

P.S.

Dee's PC is still in the shop! She'll be back online when she gets it fixed. She sends Love to everyone.

Re: LIVING WITH . . . MPN'S (PV, ET, MF) -- 2012

communityreply@lls.org — Wed, 17 Apr 2013 10:08:02 GMT

Hello everyone!

I also am so saddened by the terrible acts! I sometimes wonder if it will ever stop happening? My heart goes out to all who had to endure yet this another terror.

Just a quick note: Dee has her PC in the shop, but she's alright and hopes to be back online soon again.

Love to all, Patti

Re: LIVING WITH . . . MPN'S (PV, ET, MF) -- 2012

communityreply@lls.org — Sun, 31 Mar 2013 11:29:43 GMT

Happy Easter to all!!!

Thinking of you everyone!

Patti

Re: LIVING WITH . . . MPN'S (PV, ET, MF) -- 2012

communityreply@lls.org — Sun, 24 Mar 2013 11:09:22 GMT

Hello Pegetha and everyone! Sorry I've also been lazy about getting on here. Lot's going on, and just forget sometimes. or been too tired to sit and write anything. I'm doing ok, even thought the ferritin levels are again really getting low. I guess the Doc will again get me to have yet another infusion or two soon? I can't wait for some warmer weather here. We did have a couple weeks where it was great, then turned a bit cold again. I really cant complain as we dont have blizzards and snow here like some here do. All in all, Southern Oregon isn't too bad. I do send my love and prayers to all here, and know I do think of you everyday.

Patti 60, ET/PV