No one is telling me anything

communityreply@lls.org — Thu, 12 Apr 2012 13:53:34 GMT

I'll start with: I have had bruising for... well, I don't even know how long.

I went to my doctor, who ran tests for hemophilia, etc. - nothing. So he sent me to a hematologist (in the cancer center).

I had blood work taken, waited, and then finally saw the doctor. He proceeded to draw me pictures explaining the blood process, etc. because my WBC was high. Keep in mind I'm 27. Apparently my WBCs, or "fighter pilots" are fighting something. He said he didn't want to give me any "names" because he didn't want to scare me, however he kept throwing in leukemia, chronic, and saying we can look at many treatment options to keep it in remission? They spent too long feeling my stomach, and sent me to get a CT scan.

Now he is on vacation - and my life is on hold.

I called to ask about my blood work and his assistant would only give me half the information, my WBC and platelet counts, and proceeded to tell me there were a couple off things but I need to wait for the doctor. I also cannot see another - they're busy. She said my blood work was fine, and specifically, that I do NOT have chronic myeloid leukemia. I got my blood work from my family doctor once they faxed it.

Things ARE NOT FINE. Right at the top of the paperwork, it states leukocytosis, thrombocytosis, and "evaluate for myeloproliferative disorder"

Someone please give me some kind of information. Do I really need to be worried?

Symptoms: go to sleep - wake up with another bruise (they have steadily gotten bigger), sore legs in general, weight loss - 163-135 ( I am also on adderall, so it's hard to tell) from Decemer-ish to now

Blood work:

WBC 12.3 H (high/low)

Platelet 538 H (I also started menstruating a day or two after the test - so the levels actually decrease before, they are probably lower than they would be)

ANC Auto 8.4 H

Neutrophils Auto 68.3 H

Lymphocytes Auto 24.2 H

(all others are high normal)

Fibrinogen 365

TSH .11 L (range is .27-4.20) so I'm slightly(?) hyperthyroid

Thyroglobulin 264 H (supposed to be < 22)

C Reactive Protein <5.0 (supposed to be 0.0-8.0) so normal

Can anyone tell me - are these numbers something to be worried about?

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No one is telling me anything