The Leukemia & Lymphoma Society Community : All Content - Coping with Treatment

Back looking into the Abyss

jane_cormack@hotmail.com — Fri, 06 Nov 2009 05:01:17 GMT

Hi Tony,

Wow, what a blow to the psyche, thinking you're going to have radiation and then the big guns get pulled out on you. I'm so sorry to hear you're on this path. However, I will hope and pray that this set of treatments does the job and gives you a long remission.

Hugs and blessings,

Jane

Need help to understand bone marrow biopsy report

tex_silver@yahoo.com — Wed, 21 Oct 2009 18:03:29 GMT

I was at Fred Hutchinson/SCCA, too. I can't say enough good about that group. Excellence followed by excellence.

But, as Barlee said, there are a lot of places where you will get top notch care. Her suggestion to start with your insurer is a really good one.

Blessings

Questions?Remission induction

tex_silver@yahoo.com — Tue, 13 Oct 2009 16:24:25 GMT

Sorry but I had to chuckle when you mentioned the hiccoughs. I had them too but not just after the push. They just wouldn't go away. Now I remember them with humor. But at the time they drove me to distraction.

I don't remember asking about meds for them but I think my doc would've given me something if they had them. But that was nearly six years ago. They might have something now. It never hurts to ask the docs.

My doc mentioned a transplant in almost the same paragraph as she told me I had leukemia. So from my experience it wasn't unusual. However, my doc knew that my particular dx was going to lead to relapse and require a transplant.

Still, if you're talking about things like testing siblings, I do think that's a pretty common step with all AML patients. I can't think what else they could be doing to prep for transplant at the moment. So, I wouldn't worry much about that.

I know this forum is about treatment but it's not necessarily that well read. If you'd ask these questions in the AML forum, you'd probably get more answer.

Blessings

Chemo affecting teeth

communityreply@lls.org — Sun, 11 Oct 2009 16:45:35 GMT

Are you opposed to flouride? Because if not, your ped can give you an RX for it to supplement. I only say because the chemo hasn't affect our child's teeth (yet) -- he didn't have teeth when treatment started -- but our ped did say we should have him on a supplement. Other than that, I don't know what you could do.

Results from Bone Marrow do not show remission

tex_silver@yahoo.com — Thu, 08 Oct 2009 16:00:35 GMT

Okay, I understand better and my original thoughts remain in place. Your daughter's been responsive to chemo. There is absolutely no reason to think that won't continue. (Okay, doouble negative.) Ahem...there is every reason to expect that will continue.

Both Pam and I were AML patients. I don't know much about ALL or its protocols. But when we become transplant patients a lot of the distinctions dissolve.

Anyway, I'd expect her to reach remission with this part of her chemo. Then it should be full steam ahead to transplant.

Hope this helps.

Blessings

blood counts not recovering

joelofnj@hotmail.com — Wed, 30 Sep 2009 04:03:59 GMT

I have CLL and took the chemo drug Bendamustine. It seems to have attacked the red cells. I've had 2 blood transfusions [3rd tomorrow]. The Hgb count goes up a pt then drops. It seems that it's a waiting game for the drug to stop its attacks. Best idea- keep up with transfusions; I'm told it will resolve in time. Best wishes.

a kind of embarrassing question, relating to ladies.

pamderry@aol.com — Mon, 28 Sep 2009 23:42:54 GMT

Michele, chemo put me into menopause, and I stayed there---but I was older, I think 49. So I was soon to be in menopause anyway.

I heard for younger women, chemo can put you into a kind of temporary menopause, but eventually your cycle will come back. But I can see where it might be crazy for a good while. WBF had a good suggestion, maybe asking female oncology nurses....hope it gets more regular!

Pam

Is anyone with CMML bothered by a skin rash?

communityreply@lls.org — Tue, 15 Sep 2009 16:08:23 GMT

Thank you. I will certainly give it a try. Someone had suggested Tagamet here, I wonder if it's similar. I wish your dad all the best. This is a frustrating disease.

Joni

Message was edited by: Brooke15

A mothers love

twana@gt.rr.com — Tue, 25 Aug 2009 02:47:03 GMT

Thank You,

You just being there has helped me alot. When we pray we will pray for you also

Twana

Hair Loss 18 months after chemo

lovetheride@sbcglobal.net — Thu, 13 Aug 2009 20:48:30 GMT

Hello everyone! I have a question for you all. My Husband was DX with NHL in July, 2007. He went thru RCHOP, lost his hair, finished that in Dec, 2007, and just finished his 3rd round of maintenance Rituxin. For the last 2-3 months his hair has been falling out. All over is body not just his head. Has anyone else experienced this? He will see his ONC in Dec. Curious to know what you think??????? THANKS! Susan