The Leukemia & Lymphoma Society Blog

The Leukemia & Lymphoma Society Blog

7 Posts tagged with the teleconference tag

The Leukemia & Lymphoma Society (LLS) is proud to offer telephone education programs for blood cancer patients and their caregivers. These programs, which require free registration, are both informative and interactive for those dealing with specific types of blood cancer or certain treatment topics.

 

Free registration is now available for these upcoming October programs.

 

October 14, 2009 - Treating Uncommon Lymphomas: Dialogue with an Expert on T-Cell, Malt, and Waldenström Macroglobulinemia

October 29, 2009 – Managing Myeloma: An Expert’s Update

 

Check the National Education Programs page often to see what is available, or visit any of the archive pages to listen to past programs, download transcripts or to access highlights from many of the past programs (archive pages can be found in each disease education series section – for example, there is a link to the archived programs on the Myeloma Education Series page).

 

Need assistance? Call the Information Resource Center at (800) 955-4572 and someone will be able to answer your question or steer you in the right direction.

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As with every year at The Leukemia & Lymphoma Society (LLS), our staff and volunteers work hard to provide the highest quality services and events as possible, as well as to advocate on behalf of blood cancer patients and fund critical research.

 

Here are some interesting highlights from 2008 to remind you of what we've worked to accomplish:

  • Our Patient Services group did it again by offering more than 20 free telephone education programs to patients, caregivers, and medical professionals around the globe. These programs featured expert speakers who talked about topics ranging from Advocating for Your Child's Learning Needs: Through Treatment and Beyond to Tomorrow's Therapies Today: Clinical Trials for Leukemia, Lymphoma & Myeloma. Find out what free programs are available for registration now by going to the National Education Programs web page now.

  • Speaking of clinical trials, LLS now supports a free clinical trial service that enables blood cancer patients to find clinical trials more easily. Patients can also call the Information Resource Center at (800) 955-4572 if they need assistance while using the system. Learn more about TrialCheck® at our website today.

  • Our local chapters have been hard at work in the communities they serve. The Chapter Education Programs reached 48,000 patients and caregivers in 2008. Our Family Support Groups, also a community-based program, reached 12,000 participants in 2008. Find out more about this program.

  • Aside from launching The Leukemia & Lymphoma Society Blog (this blog that you're reading right now), we also launched The Light The Night Walk Blog. Read about inspiring people and fundraising successes there.

  • LLS now offers more than 50 different up-to-date free booklets, fact sheets and brochures on blood cancer, treatment and support topics. Most are available in Spanish, as well. Browse our Free Materials section and download or order your free copies today.

  • LLS awarded a new Marshall A. Lichtman Specialized Center of Research (SCOR) grant to Beverly Mitchell, M.D., George E. Becker Professor of Medicine at Stanford University. She and her team will receive $1.25 million a year for five years, for a total of $6.25 million. Learn more about this award, and what Dr. Mitchell and her team are researching.

 

There's so much more that we've done over the last year (lots of events, new booklets and fact sheets, not to mention, introduce our new president and CEO, John Walter), and we're still going strong even as the year is coming to a close.

 

As we look to 2009, we realize that there's so much that we still need to be doing in the fight against blood cancers, but we can't do it without the support of our donors. We know that so many of you receive countless requests from other charities and non-profits at this time of year, but if you have been personally affected by a blood cancer then you understand the value of what The Leukemia & Lymphoma Society offers. Your secure tax-deductible online donation will help us to be able to continue to offer the services and events that are critically needed by patients, caregivers and survivors in 2009.

 

Every little bit helps. Donate to LLS today.

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We've talked about our financial aid programs here before, but it’s good to get a reminder every now and then – especially now that we’re all feeling the crunch a little more with the slowing economy.

 

First, a few items to keep in mind:

  • Not all patients will qualify for financial assistance, but the surest way to find out is to contact us for eligibility information.

  • We receive quite a few applications on a regular basis and process them in the order that they are received, so be assured that we are working very hard to process your application if you have already submitted one.

  • If you are confused about something on the application, contact us and we’ll  explain.

 

Here is our list of financial aid programs for patients that you may be able to use:

 

  • Co-Pay Assistance Program – This program offers financial support for eligible patients towards the cost of insurance co-payments and/or insurance premium costs for prescription drugs. If you have questions about this program call the Co-Pay Assistance Program at (877) 557-2672 or email copay@lls.org and a specialist will assist you.

  • Patient Financial Aid Program – This program offers financial reimbursement for some medications, transportation and procedures. You can also contact your local chapter, and they will be able to assist you.

 

Here are a few other educational resources which you may find helpful as you try to figure out how best to manage your finances in relation to health care costs:

 

 

As always, if you have any questions please feel free to contact our Information Resource Center by sending a message via our Contact Us form or call us at (800) 955-4572. Our specialists will be happy to assist you.

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This time of year we all seem to have so much more to do. Why not plan some things just for you? If you have myeloma or know someone who does, check out our new fall program at The Leukemia & Lymphoma Society (LLS). We also have several local events (Chapter Education Programs) about all types of blood cancers going on throughout the year. Included below are some offerings you may want consider in the coming weeks and months.

 

National Education Programs

 

October 15, 2008 - Understanding Myeloma: From Diagnosis Through Treatment. Register now for this telephone education program which will feature Dr. Asher A. Chanan-Khan. Participants will have a chance to ask Dr. Chanan-Khan questions during this hour and a half program.

 

Chapter Education Programs

 

Contact your local chapter about the availability of the following programs in your area:

  • Welcome Back: Facilitating the School Experience for Childhood Cancer Survivors - Note that parents are also welcome at this event.

  • Getting the Best Cancer Care at Age 55 and Older

  • Milestones in Myeloma Therapy: An Overview for Patients and Caregivers

  • The Road to Discovery: Emerging Therapies in Blood Cancers

 

There are also other programs that occur all throughout the year. Find out more about the following on-going programs:

 

  • Family Support Groups - These are regularly scheduled meetings that bring together patients, families and friends.

  • First Connection - Be matched with someone who has been through a similar cancer experience. Volunteers are also welcome to join this program.

  • Chat Sessions - Every Monday and Wednesday NHL patients are welcome to come online and chat about their cancer experience.

 

As always, feel free to share suggestions, ideas or questions with our Information Resource Center staff. Contact us via our Contact Us form or by phone at 1-800-955-4572. Or just visit us at www.LLS.org.

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The costs of cancer

Posted by Samantha Mills Mar 21, 2008

Unless you’ve been hiding somewhere, you’ll know that the economy is having a little bit of a tough time right now. The headlines I’m seeing as I’m typing this are:

  • “Cash strapped, and driving less”

  • “The next shoe to drop in housing”

  • "Financial markets looking for bottom”

  • “A slice of pizza gets pricier” (And yes, that’s a real headline – and a real shame for pizza lovers.)

 

It’s not easy dealing with a strapped economy when you’re well, let alone when you have a disease like cancer. You might already be feeling uneasy about your job, retirement income, and assets. On top of everything else you now have medical bills. It’s crazy, and it’s making you crazy (I would be anyway).

 

The Leukemia & Lymphoma Society (LLS) can’t solve all of your financial woes, but we have a few resources that may be able to help you find some relief.

 

 

There is also a wealth of advice about your employment rights as a cancer survivor, issues with insurance, and other programs that help with prescription drug coverage.

 

Finally, there is an archived teleconference in the Survivorship Education Series section of the LLS website called, “Cancer Survivorship: Practical Tips for Managing Your Financial and Insurance Issues.”

 

What do you do when your medical bills become too high? Are you going through this now?

 

 

 

If you think someone you know would benefit from this information share this blog post with them.

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We sponsor a lot of very interesting teleconferences, but they usually take place on a weekday in the middle of a day. This means that many people who are at work or busy doing something else are not able to listen to these live events. Luckily we have our telephone education programs archived on our website, and additionally we have several podcast feeds.

 

Up until just a few days ago we had three podcast feeds:

 

 

We just added seven more podcast feeds to make it easier for people to listen to the teleconferences they are interested in. Here’s a list of our new feeds:

 

 

Okay – so a lot of people may not know what RSS or podcasts are. I’ll try to explain.

 

Really Simple Syndication (RSS) has been around for quite a while (since about 1999), but it hasn’t really taken off until the last few years. Personally, I didn’t really start to utilize it myself until a couple of years ago, but now I am taking advantage of it on almost a daily basis.

 

RSS allows you to read content from all of your favorite websites in one place. Do you find that you don’t have time to visit all of those websites on a daily basis, but you still want to read their content? The solution is to create an account with an aggregation service like Google Reader or Newsgator, then add your favorite website’s feed to the aggregator. At this point those websites syndicate their information to you.

 

A podcast feed acts the same way, except instead of text-based content, websites (like ours) can syndicate their digital media files (like teleconferences) to you. With our podcast feeds you’ll always stay up to date when there is a new teleconference, making it so you have less of a chance to miss that important and informative information.

 

Learn more about our new feeds and RSS on our LLS News Feeds and Podcasts page.

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Did you know that The Leukemia & Lymphoma Society sponsors regular teleconferences covering topics ranging from Cancer Survivorship: Practical Tips for Managing Your Financial and Insurance Issues to Emerging Therapies in Myeloma? Patients and caregivers, as well as healthcare professionals, are encouraged to register for these free events.

 

Here are a couple of upcoming teleconferences:

 

February 13, 2008 - Advocating for Your Child's Learning Needs: Through Treatment and Beyond

February 21, 2008 - Stem Cell Transplantation: Current Trends and Future Directions

 

If you are unable to attend these teleconferences as they happen they are archived later on our website which you can access via our podcast feeds or in the National Education Workshops section of our website.

 

Have you listened in on one of our sponsored teleconferences before?

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