The Leukemia & Lymphoma Society - Fighting Blood Cancers

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4 Posts tagged with the myeloma tag
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Patient Programs Update

Posted by millss Sep 22, 2008

This time of year we all seem to have so much more to do. Why not plan some things just for you? If you have myeloma or know someone who does, check out our new fall program at The Leukemia & Lymphoma Society (LLS). We also have several local events (Chapter Education Programs) about all types of blood cancers going on throughout the year. Included below are some offerings you may want consider in the coming weeks and months.

National Education Programs

October 15, 2008 - Understanding Myeloma: From Diagnosis Through Treatment. Register now for this telephone education program which will feature Dr. Asher A. Chanan-Khan. Participants will have a chance to ask Dr. Chanan-Khan questions during this hour and a half program.

Chapter Education Programs

Contact your local chapter about the availability of the following programs in your area:

  • Welcome Back: Facilitating the School Experience for Childhood Cancer Survivors - Note that parents are also welcome at this event.
  • Getting the Best Cancer Care at Age 55 and Older
  • Milestones in Myeloma Therapy: An Overview for Patients and Caregivers
  • The Road to Discovery: Emerging Therapies in Blood Cancers

There are also other programs that occur all throughout the year. Find out more about the following on-going programs:

  • Family Support Groups - These are regularly scheduled meetings that bring together patients, families and friends.
  • First Connection - Be matched with someone who has been through a similar cancer experience. Volunteers are also welcome to join this program.
  • Chat Sessions - Every Monday and Wednesday NHL patients are welcome to come online and chat about their cancer experience.

As always, feel free to share suggestions, ideas or questions with our Information Resource Center staff. Contact us via our Contact Us form or by phone at 1-800-955-4572. Or just visit us at www.LLS.org.

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September is an important month for us at The Leukemia & Lymphoma Society (LLS). It is a special time when our ongoing collaboration with patients, caregivers and medical professionals is highlighted by our campaign for leukemia, lymphoma and myeloma awareness. Please join us in this campaign to educate more people about blood cancer.

Here are some quick facts* you can share on your own websites, blogs, social networks or in conversations with friends.

  • Today more than 894,000 people in the United States are living with a type of blood cancer.
  • Today about 75 percent of children with acute leukemia and nearly 80 percent of children and adults with Hodgkin lymphoma are cured.
  • Every ten minutes someone dies from a blood cancer.
  • An estimated 52,910 people will die from a blood cancer this year.
  • Since LLS began in 1949, our organization has invested more than $600 million in research to find cures and better therapies.
  • This year alone, LLS will dedicate $71.4 million to research.

Another thing you can do this month is help our Public Policy team work to get September officially recognized as Leukemia, Lymphoma and Myeloma Awareness Month by your state. How does this help? It ensures that there will be more media coverage around the month, which means more people will learn about blood cancers. It also means more people could support the fight to eradicate cancer. Contact your local LLS chapter to learn more about how you can help.

Learn more about leukemia, lymphoma and myeloma on the LLS website at www.LLS.org, or contact the Information Resource Center with any blood cancer questions.

*Note that these statistics are for leukemia, lymphoma and myeloma only.

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We have many resources in English, but in case you didn’t know we have resources that can be of help to people whose native language might not be English.

Free Materials
Available in Spanish (Español) and French (Français)

Free materials are available in Spanish (Español) - you can download a PDF or order a printed copy - and French (Français), but you can download a PDF only. When you are on the www.LLS.org website look in the left-hand column and click on Patient Services, then Free Materials, then you will see Spanish Publications (Publicaciones españolas) and French Publications (Editions françaises).

http://community.lls.org/servlet/JiveServlet/downloadImage/38-1149-1014/freematerials.gif

Financial Assistance
Available in Spanish (Español)

Need financial assistance? Spanish-language speakers (las personas que hablan español) can download our Patient Financial Aid application in Spanish (Solicitud de ayuda económica para pacientes) as a PDF. There is also a handy step-by-step guide in Spanish (Cómo solicitar la inscripción en el programa de ayuda económica para pacientes) to help you fill out the application.

http://community.lls.org/servlet/JiveServlet/downloadImage/1013/patientfinancialaid.gif

Free Newsletters
Available in Spanish (Español)

Visit the following pages in our National Education Programs section for access to our downloadable Spanish newsletters (boletines españoles) available as PDFs.


Can’t find what you need? Let us know here by leaving a comment or by contacting our Information Resource Center by calling (800) 955-4572 or filling out our online form.

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Today we are launching The Leukemia & Lymphoma Society’s first blog! There are a few things that we hope to accomplish with this new communication tool, but most of all we want to make this an informative and interesting destination for you: patients, caregivers, and anyone else affected by any of the blood cancers.

A few topics we plan to cover are advocacy, teleconferences, news articles, and more…

We’d love to get ideas from you, though. What do YOU want us to write about? (To comment you must first register if you haven’t already – registration is easy and free!)

To make sure you are the first to know when we have posted a new blog entry subscribe to our RSS feed. Or you can bookmark this webpage in your browser and visit us often.

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