The Leukemia & Lymphoma Society Blog

The Leukemia & Lymphoma Society Blog

2 Posts tagged with the co-pay_fees tag

A few weeks ago we shared a post on financial insecurity and blood cancer treatment, sharing with you some helpful links to information and programs provided by The Leukemia & Lymphoma Society (LLS). In this post, we wanted to highlight the personal side of our Co-Pay Assistance Program and share with you a couple of stories about myeloma patients who have benefited from this program.

 

Kalimah Jenkins, a 44-year-old African American from Atlanta, GA, was stunned to find out that her bone pain and fatigue were symptoms of myeloma, a difficult blood cancer. She was equally as shocked when she found out how expensive her treatment would be, and wasn’t sure how she would be able to pay for the drugs she needed. It was in her favor that her doctors knew about LLS’s Co-Pay Assistance Program, which helped her pay for her critical treatment.

 

Cislyn Blackwood, a 60-year-old from Fresno, CA, also a myeloma patient, has also benefited from the Co-Pay Assistance Program. Her treatment was already very expensive, but after being laid off from her job and her COBRA benefits running out, her financial situation became ever more challenging. She received the funds she needed through LLS's Co-Pay Assistance Program and was able to pay for her medication.

 

Both women say that LLS’s program has been a tremendous help, and are grateful that they found out about it; unfortunately, some myeloma patients who can’t afford it wind up going off of life-saving treatment.

 

If you or a loved one has been diagnosed with myeloma, visit www.lls.org/copay or call (877) LLS-COPAY to find out if you or they qualify for assistance. Note that other blood cancer patients may quality for assistance as well.

 

If you are a doctor, visit www.lls.org/copayproviders to find out how you can apply for the Co-Pay Assistance Program on behalf of your patients.

 

Learn more about Kalimah’s and Cislyn’s stories.

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Recently I’ve been reading some articles online about the costs of cancer medications like Avastin* and Gleevec. When insurance companies up the cost of co-pays for these medications (our very own Hildy Dillon, Senior Vice President, Patient Services responded to this NYTimes article in a letter to the editor), it can cost the patient many thousands of dollars, and even doctors and medical practices can be hard hit by the rising cost of drugs. For the patients interviewed in these articles, the benefits outweigh the costs because the drugs mean living longer, but many patients do not have the adequate monetary resources to cover the costs of their medications. It’s not even fully clear to the medical industry if the extended length of life for some patients is because of drugs like Avastin.

 

Our Public Policy team here at The Leukemia & Lymphoma Society (LLS) has also been learning about these issues of higher co-pays vs. the benefits of the cancer drugs, and they are interested in hearing if you are experiencing some of this from your insurance companies.

 

Please consider sharing your answers to the following questions.

 

Do you have to pay more for blood cancer medications than you used to?

 

Do you rely on Gleevec or any other high priced medicine? Do the benefits outweigh the cost?

 

Would you be interested in LLS fighting for lower drug co-pays?

 

Leave your answers and comments here or you can contact the Office of Public Policy by filling out our online contact form.

 

Learn more about how you can get involved with the Office of Public Policy as an advocacy volunteer.

 

*We understand that blood cancer patients do not use Avastin, but we believe that issues like this that may affect other cancer patients may ultimately affect the blood cancer patients we seek to serve.

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