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3 Posts tagged with the blogs tag
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Tell Us Your Story!

Posted by millss May 9, 2008

First things first - we have a favor to ask of you! Consider sharing your story with us via our Tell Us Your Story contact form that we recently added to the website.

We have a lot of ways that we can keep in touch with our web visitors.

  • There is a great network of websites, including our main one, www.LLS.org.
  • There is this blog, The Leukemia & Lymphoma Society Blog.
  • We have regularly scheduled telephone education programs.
  • We also provide several e-newsletters that our visitors can subscribe to.

These are just a few ways that we can keep you informed online.

On top of the above communication channels, we recently decided that our online contacts need to read about the people who have been positively affected by The Leukemia & Lymphoma Society (LLS). Right now we have elements of this, but we decided to devote some of our emails with real stories of people who have been helped in some way by our work. These are people who are battling blood cancer, may be in remission, or caregivers taking care of someone with blood cancer. We haven’t sent any messages out yet, but if you are an opt-in contact* you should receive our first story soon.

What we’d really like is to hear from you so we can tell our contacts your story. Have you utilized any of our resources during or after diagnosis? Do you volunteer with us in any capacity? Do you participate in any of our events? If the answer is yes to any of these questions, please go to our Tell Us Your Story contact form and let us know your story.

If you don’t have a story you’d like to share, but you still want to contact us, I’d suggest using our main contact form so your question or comment can be routed to the appropriate staff person more quickly.

*An opt-in contact is someone who has agreed to be contacted via email by The Leukemia & Lymphoma Society. This type of agreement can take place while you’re signing up for an e-newsletter or by filling out one of our online contact forms.

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Lymphoma in the Blogosphere*

Posted by millss May 5, 2008

You may remember that a few weeks ago we looked at a couple of personal leukemia blogs. This week I thought I’d take a look at lymphoma in the blogosphere.

I just went to Google Blog Search and typed in “lymphoma” – results are well over one million (1,165,066 at the moment) for all time. I then clicked on “last day” in the left column and 190 results were pulled up. A lot of people are talking about lymphoma – and their experiences are very diverse.

Bill, a.k.a. Billy Bird on his blog, recently started to write Lymph Notes. He was diagnosed with lymphoma on December 24, 2007. Recently someone asked him what having cancer has taught him, and he provided his answer on his blog:

I hope that the biggest lesson I have learned is to continue to think positively. Without doubt, I have created a new future committed to allowing myself to love and to accept love, or at least to work on developing such an outcome. That pledge, combined with an ability to think positively, will be the lesson I hope I never forget.
Another blog, A Pastor's Cancer Diary, is written by Carl. He was diagnosed with non-Hodgkin lymphoma in 2005. His posts are filled with anecdotes and spiritual advice for every day life. Earlier this month Carl reflected on the challenges of cancer:
I realize that, in the cancer world, there are far more serious pains, far more grueling challenges than those I’ve had to undergo. Each fresh obstacle presents its own level of difficulty. Yet, I’m coming to realize this same principle holds true, at every level. God is right there with us. The sound of sheer silence speaks. Together we travel, one step at a time.
Do you write a blog? If so, we’d love to take a look!

Learn more about the lymphomas:


*From Wikipedia.org: Blogosphere is a collective term encompassing all blogs and their interconnections. It is the perception that blogs exist together as a connected community (or as a collection of connected communities) or as a social network.

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Leukemia in the Blogosphere*

Posted by millss Feb 12, 2008

Take a few minutes and go to a website like Technorati. Type in the search bar “leukemia” and see how many blog posts come up. I just did a search and as of right now it says that 677 posts are tagged “leukemia” and there are 152 blogs about leukemia. There are also quite a few videos and photos.

It’s inspiring to read some of these blogs. It’s clear that writing about their experiences with cancer, whether they are a patient, caregiver or family member, is therapeutic and relieving. Not only are they helping themselves, the people who run across their blogs are finding hope and encouragement.

Take a look at How's Dave Doing?, a blog written by Anna about her husband Dave’s battle with leukemia. It’s both touching and informational. Read her recent post reviewing our very own Emerging Therapies for Blood Cancer Patients seminar held in San Francisco.

It was a strange feeling to sit in a huge ballroom, filled with hundreds of people, and think, "Most of these people have Leukemia or Lymphoma." You'd see a couple, and try to guess which one was the patient and which one was the caregiver, and it wasn't possible.
Another blog, The Plog, written by PJ, is about a woman’s experience as a leukemia patient and cord blood transplant recipient. She writes both about normal day to day experiences and surviving cancer. In January she celebrated her birthday with a morning run:
What made me go out for a run this morning at 7:30 when the temperature flirted with thirty? The flip answer is: because I could. The real reason I braved black ice was that today marks the completion of 54 years of living. There were moments over the past 22 months when I didn't think I'd survive to celebrate this day, let alone run two miles. My mother died of cancer when she was 53, and ever since I received my leukemia diagnosis at 52, it's been impossible for me not to dwell on her untimely death. Those were footsteps I did not want to follow.
Do you have any favorite personal cancer blogs that you follow? Do you write one?

*From Wikipedia.org: Blogosphere is a collective term encompassing all blogs and their interconnections. It is the perception that blogs exist together as a connected community (or as a collection of connected communities) or as a social network.

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