The Leukemia & Lymphoma Society Blog

This week the public was shocked to learn that one of basketball’s most famous players had been diagnosed with early stage chronic myelogenous leukemia (CML). Kareem Abdul-Jabar, NBA hall of famer and a former player with the Los Angeles Lakers, was diagnosed with CML last December. Abdul-Jabar is known for being an intensely private person, but he decided recently to go public with the disease to shine a spotlight on CML. In an interview with CBS News (see: http://www.cbsnews.com/stories/2009/11/10/eveningnews/main5605532.shtml) he shared that his intention for sharing his diagnosis with the public was to give a message of hope and that he intends on continuing to live a normal life.

 

A key reason why he can live a normal life is because he takes daily oral medication for his CML. While he has not revealed what drug he is taking, most people diagnosed with CML are started on Gleevec®, a drug that was developed several years ago through LLS-funded research by Dr. Brian Druker (as you may recall, Dr. Druker and two colleagues were recently awarded the prestigious Lasker~DeBakey Clinical Medical Research Award for their work on Gleevec). Gleevec was a big breakthrough in treatment for CML, and now there are two other oral medications that are also approved to treat CML.  Today many people who have early-stage CML are doing great -- thanks to staying in treatment -- and seeing their doctors regularly to make sure their medication and dosage are still the best choices for them.

 

What is CML?

There are four different types of leukemia, which means that receiving a leukemia diagnosis does not mean that every patient’s experience will be the same. Chronic myelogenous (or myeloid) leukemia is a slow-growing blood cancer that is more commonly diagnosed in adults, although some children do get CML. There are several different signs and symptoms of CML include a high white blood count, tiring more easily and having night sweats.  However these signs and symptoms do not mean that a person has CML since they can be associated with other more common conditions. We always recommend that if you suspect that your health is not what it should be that you talk with your doctor. Learn more about CML on www.lls.org.

 

If you or someone you know has been diagnosed with CML and you are looking for information and support, you may access several of our free resources listed below.

 

Download or order any of the following free education materials

Chronic Myelogenous Leukemia (CML)

The CML Guide: Information for Patients and Caregivers

My CML Tracker (An online tool)

 

Find Support from LLS or those living with CML

Information Resource Center – Call 1-800-955-4572 or ask us a question online

Co-Pay Assistance Program

Family Support Groups

LLS Blood Cancer Discussion Boards – Living with CML

 

As Abdul-Jabar says, there is hope for those who have received a CML diagnosis. If you have a positive story to share about your experience with CML we encourage you to post it on The Leukemia & Lymphoma Society Community in the Tell Us Your Story section as inspiration to others.

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It's been some time since we've been able to upgrade the Discussion Board platform that has been so popular among our patient and caregiver visitors, so it's with great joy that we announce the launch of our new platform today! The LLS Blood Cancer Discussion Boards are the latest addition to the LLS Community ( see: community.lls.org ), the social networking site that we launched last year for our Team In Training colleagues. In the interim, community spaces were created for Light The Night and Hike For Discovery. The LLS Blog and @LLS, our marketing and promotion blog, were also launched from this platform. However, the biggest and (we anticipate) most active community space with be the LLS Blood Cancer Discussion Boards.

 

Our Discussion Boards have a new look and feel:

 

llscommunity_screenshot.jpg

 

What's New?

 

Like the old Discussion Boards, our Information Resource Center (IRC) staff will continue to monitor this community. Unlike the old Boards, the new Boards offer a number of enhancements for everyone who registers at community.lls.org:

 

 

If you're concerned that this might take some getting used to, read our update on the reasons behind why we chose to move and change software in the Comment on the Discussion Boards section on the LLS Blood Cancer Discussion Boards.

 

What's to become of the old Discussion Boards?

 

With the transition to the new platform, we will be leaving the old Discussion Boards in a view-only format through July 1st. At that time we will remove those files from our site.

 

Questions?

 

If you have any trouble registering send an email to community@lls.org .

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