Emily was awarded the Abbey Rare Voice Award, named after Abbey Meyers, the patient-advocate who spearheaded the passage of the Orphan Drug Act years ago. While working as Legislative Director, Office of Representative Edolphus Towns (D-NY), Emily took on a leadership role to ensure that rare disease provisions were included in the latest Food and Drug Administration reform bill. Emily worked to strengthen the FDA accelerated approval pathway making it more accessible for treatments and cures for rare diseases.
Now that she is on-staff with LLS’s Office of Public Policy, Emily is building on her efforts on the Hill by trying to move policies that reduce barriers that patients face trying to get access to current treatments, while incentivizing the development of new treatments and cures.
LLS’s advocacy team represents the needs of cancer patients and their families in Washington, D.C. and state capitals throughout the United States. We need your help. Be an advocate for LLS and make your voice heard.
Photo: Emily Shetty and Mark Velleca, LLS Chief Policy and Advocacy Officer