The Leukemia & Lymphoma Society Blog

A few weeks ago we shared a post on financial insecurity and blood cancer treatment, sharing with you some helpful links to information and programs provided by The Leukemia & Lymphoma Society (LLS). In this post, we wanted to highlight the personal side of our Co-Pay Assistance Program and share with you a couple of stories about myeloma patients who have benefited from this program.

 

Kalimah Jenkins, a 44-year-old African American from Atlanta, GA, was stunned to find out that her bone pain and fatigue were symptoms of myeloma, a difficult blood cancer. She was equally as shocked when she found out how expensive her treatment would be, and wasn’t sure how she would be able to pay for the drugs she needed. It was in her favor that her doctors knew about LLS’s Co-Pay Assistance Program, which helped her pay for her critical treatment.

 

Cislyn Blackwood, a 60-year-old from Fresno, CA, also a myeloma patient, has also benefited from the Co-Pay Assistance Program. Her treatment was already very expensive, but after being laid off from her job and her COBRA benefits running out, her financial situation became ever more challenging. She received the funds she needed through LLS's Co-Pay Assistance Program and was able to pay for her medication.

 

Both women say that LLS’s program has been a tremendous help, and are grateful that they found out about it; unfortunately, some myeloma patients who can’t afford it wind up going off of life-saving treatment.

 

If you or a loved one has been diagnosed with myeloma, visit www.lls.org/copay or call (877) LLS-COPAY to find out if you or they qualify for assistance. Note that other blood cancer patients may quality for assistance as well.

 

If you are a doctor, visit www.lls.org/copayproviders to find out how you can apply for the Co-Pay Assistance Program on behalf of your patients.

 

Learn more about Kalimah’s and Cislyn’s stories.

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It’s that time of year again – weather increasingly warming up, beckoning people to get out and enjoy themselves. It can be a very satisfying time of the year, but for people who have sensitive skin as a result of chemotherapy treatment it can be a time when extra precautions are needed. Skin-related side effects of treatment may include dryness, redness, rash or itchiness.

 

Here are a few ideas of what cancer patients can do to make sure they can still enjoy the last days of Spring and early days of Summer.

 

Wear:

 

  • At least SPF 30 sunscreen – double-check that all exposed skin is covered
  • A wide-brimmed hat or scarf on your head
  • Clothing that protects against UV rays or long-sleeved shirts and trousers when in the sun

 

Plan to:

 

  • Check the weather and choose less intense days to sit outside  
  • Plan outdoor activities for early morning or late afternoon
  • Find shady areas to sit in, so you are not in direct sun
  • Bring an umbrella with you in case there isn’t shade


Ask:

 

  • Your doctor about specific sun-related effects of your therapy 
  • About topical solutions (creams, lotions or gels) to soothe, soften or moisturize skin and to prevent itching.
  • Your friends and family to bring extra sunscreen or umbrellas
  • Your peers how they cope with the sun


Learn more about chemotherapy on www.LLS.org or call our Information Resource Center with any blood cancer questions you may have at (800) 955-4572.

 

How do you protect your sensitive skin on sunny days?

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