The Leukemia & Lymphoma Society Blog

If you are the mother of a child with leukemia or lymphoma, you know how it feels to go from being able to fix all of your child's scrapes and bruises one day to grappling with a whole new world of doctors and nurses, chemo, radiation therapy and blood counts the next.

 

The Leukemia & Lymphoma Society (LLS) is here to support mothers with information and resources. Please think of us as an extention of the support system you may already have. These resources can help you and your child as you look forward to recovery.

 

 

We have many other resources which you can learn about by going to www.LLS.org or calling and speaking to one of our information specialists at (800) 955-4572.

 

Not a mother, but want to say thank you to one? Learn more about how you can honor a special mother in your life this Mother’s Day.

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Ask around and you'll learn that leukemia is generally thought of as a childhood disease. A lot of people don't realize that many more adults than children develop leukemia and other blood cancers. What may be even more surprising to learn is how many people diagnosed with leukemia, Hodgkin lymphoma and non-Hodgkin lymphoma are young adults.

 

Yes, there's a population of young adults out there who have lives that include (alongside getting an education, dating, making career choices, getting married, having babies) chemo and radiation therapy, stem cell transplants, bone marrow biopsies and hair loss. A.K.A. life on the road to surviving cancer.

 

National Young Adult Cancer Awareness Week is raising awareness about the impact of cancer on young adults. Vital Options, a support and advocacy organization devoted to young adults with cancer, launched this annual event in April 2003. Since then, organizations like The Leukemia & Lymphoma Society (LLS) have partnered with Vital Options to keep spreading the word.

 

If you are a young adult with a blood cancer, we encourage you to take advantage of our many online resources including:

 

  • LLS Blood Cancer Discussion Boards - Connect with your peers for valuable input and support.
  • RSS News Feeds and Podcasts - Get news and audio on a daily basis in your RSS reader.
  • National Education Programs - Register online for free telephone education programs where you'll have the opportunity to ask questions of our guest speakers. We also have an extensive archive of past programs in this area of our website.
  • Free Materials - Our materials range from information on the different blood cancers, to ways that you can cope with a blood cancer diagnosis. They are free to download or order.
  • eNewsletters - Subscribe to any or all of our monthly eNewsletters containing valuable news and updates.
  • Search for Cutting-Edge Research - Make sure you're exploring all of your treatment options by taking advantage of this online resource.
  • Information Resource Center - Chat online or email an information specialist who can put you in touch with even more information and support and help you find out about cutting-edge research.

 

Want to get involved? Learn about our different events and ways to volunteer through our How to Help section on www.LLS.org.

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It's been some time since we've been able to upgrade the Discussion Board platform that has been so popular among our patient and caregiver visitors, so it's with great joy that we announce the launch of our new platform today! The LLS Blood Cancer Discussion Boards are the latest addition to the LLS Community ( see: community.lls.org ), the social networking site that we launched last year for our Team In Training colleagues. In the interim, community spaces were created for Light The Night and Hike For Discovery. The LLS Blog and @LLS, our marketing and promotion blog, were also launched from this platform. However, the biggest and (we anticipate) most active community space with be the LLS Blood Cancer Discussion Boards.

 

Our Discussion Boards have a new look and feel:

 

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What's New?

 

Like the old Discussion Boards, our Information Resource Center (IRC) staff will continue to monitor this community. Unlike the old Boards, the new Boards offer a number of enhancements for everyone who registers at community.lls.org:

 

 

If you're concerned that this might take some getting used to, read our update on the reasons behind why we chose to move and change software in the Comment on the Discussion Boards section on the LLS Blood Cancer Discussion Boards.

 

What's to become of the old Discussion Boards?

 

With the transition to the new platform, we will be leaving the old Discussion Boards in a view-only format through July 1st. At that time we will remove those files from our site.

 

Questions?

 

If you have any trouble registering send an email to community@lls.org .

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