The Leukemia & Lymphoma Society Blog

One year ago this month a dream was put into reality when The Leukemia & Lymphoma Society Blog was launched into cyberspace. A blog can mean many things to many people and organizations, but it was our hope to bring a unique perspective with helpful news and tips to patients, families, survivors and medical professionals dealing with the ups and downs of blood cancer.

 

40-plus posts later we think that we have brought you a variety of information that we think have been both interesting and informative. We have our own favorites, but here are a few of your favorite blog posts from the last year.

 

Five ways to cope with a blood cancer diagnosis – Our most popular post, this one goes straight to the heart of the matter – how do you even deal with being told you have cancer?

 

September is Leukemia, Lymphoma and Myeloma Awareness Month – This post highlighted current statistics for the blood cancers, as well as shared how to bring about more awareness for these diseases.

 

Cleared for takeoff – “The Leukemia & Lymphoma Society Blog” launches! – This is even one of our favorites because it is our very first post.

 

Do the costs of some cancer medications outweigh the benefits? – An interesting question posed by our Public Policy team that was answered with some thoughtful comments.

 

Guest Post from Ronni Gordon, Leukemia Survivor, Cancer Blogger, and Reporter – A blogger after our own hearts, Ronni shared why the internet is an important aspect of one’s cancer journey.

 

Are there any particular topics you would like to see covered in this space in the blog’s second year?

 

A couple of quick tips to ensure you are getting the most out of our blog:

 

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Resolutions, breaking bad habits, wiping the slate clean and starting over again--these seem to be the things that a lot of people are buzzing about at the beginning of the new year. Even if you’re not into resolutions (that are often scrapped by February), you may want to consider one thing this year.

 

Resolve to communicate better with members of your healthcare team – the doctors, nurses, oncologists, hematologists, radiologists, social workers, and others who are involved in blood cancer treatment. While they have a lot of expertise, there is sometimes a communication divide that can add to the stress of diagnosis, treatment and healing.

 

So how can you close the communication gap?

 

Think about how involved you want to be. Some patients are very involved in their healthcare from the start, while others might prefer not to ask too many questions or talk too much about their diagnosis or treatment. If you tend to be less involved, consider that taking an active role in getting an accurate diagnosis and making treatment decisions could have a positive effect on your health and quality of life. You can enlist the help of family members, friends, other cancer patients, and patient advocates to support you with provider communications. Remember that you and members of your oncology team are working together to beat blood cancer.

 

Ask questions. But don’t just ask questions – make sure you take notes in case you forget anything that you might want to remember later. Not sure what to ask? Go to www.lls.org/whattoask to download printable question guides you can take with you on your medical appointments. You can also refer back to a recent blog post we wrote called Healthcare questions to ask if you have been diagnosed with a blood cancer. You might want to contact the Information Resource Center to speak to a specialist about ways to communicate with members of your oncology team.

 

Find out what lines of communication are available to you. Are you the type of person that picks up the phone when you have a question or are you more likely to want to send an email? Ask your medical team if they wouldn’t mind you calling or emailing them with additional questions.

 

Do you have any other ideas on how to improve communication between medical staff and patients? What is your preferred way to communicate with your doctor? If you are a healthcare provider, do you have helpful patient-provider communication ideas to share?

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The Leukemia & Lymphoma Society is a nonprofit way ahead of the curve when it comes to innovative uses of online technology and the latest evidence of this is our selection as one of only four companies  recently profiled on the Google Blog. Out of hundreds of applicants,  LLS was the only nonprofit to be selected by Google as a test case for their new cutting-edge marketing tool, the “Google Website Optimizer.” 

 

Google's Website Optimizer is a recent addition to the company's arsenal of free online marketing tools. This tool allows webmasters and web marketers the ability to evaluate the effectiveness of a web in real time.

 

Google launched a Website Workout Contest to select Case Studies for the Optimizer last June. Winners of the contest were paired with consultants who assisted in setting up experiments to test the effectiveness of their websites. The Leukemia & Lymphoma Society's Team In Training web site was chosen by Google as a contest winner. Tests were conducted on the homepage of the site to determine the best design treatment with surprising results. See the video to find out more.

 

For more about our commitment to innovation, read our stories on our 60th Anniversary site.

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If you are a regular visitor to www.LLS.org you’ll notice that our logo has undergone a change in honor of our 60th anniversary. That’s right – in 1949 The Leukemia & Lymphoma Society (LLS) was created by a family who had lost their 16-year-old son to leukemia just a short five years prior. At the time they named the organization after their son, calling it the Robert Roesler de Villiers Foundation.

 

In the sixty years since first working out of a small office on Wall Street, LLS has become the leading nationwide organization in the fight against blood cancers. No longer are leukemia, lymphoma and myeloma considered almost fatal diseases as they once were in 1949. Through innovative efforts LLS has helped to significantly increase survival rates of these blood cancers, and remains committed to stay on the forefront in the following areas:

 

Research – Our new Therapy Acceleration Program allows us to help facilitate the rapid development of promising new therapies that might otherwise go undeveloped.

 

Patient Services – 80,000 inquiries about blood cancers, treatments, resources and other critical issues were handled by our Information Resource Center in 2008 alone.

 

Advocacy – We have championed the first legislation in the country to provide neuro-psychological testing for pediatric cancer survivors.

 

FundraisingTeam In Training® (TNT) has raised almost $1 billion for blood cancer research and patient services in the 20 years that it has existed, and continues to be a strong fundraising force with the active support of its participants.

 

We have created a special website dedicated to LLS’s 60th anniversary where you can learn more about the innovations we’ve made and the people we have directly impacted on this journey. Visit now at www.LLS.org/innovation, and you’ll discover how and why we’re on the cutting edge.

 

Has The Leukemia & Lymphoma Society helped you or a loved one? Tell us about your story on our online community. Note: You’ll need to create a free account in order to post your story.

 

Want to give back? Make a safe and secure online donation to help us continue our mission of eradicating blood cancers.

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