The Leukemia & Lymphoma Society Blog

It's so much faster to type MDS rather than Myelodysplastic Syndrome (and easier, too, since I still manage to misspell it). At the same time, though, it can be confusing for people not as familiar with what those abbreviations mean - and especially so for people who are new to the blood cancers.

 

So what can you do to keep yourself or others straight on all the MDSs or NHLs besides carrying around a reference card?

 

I'd recommend looking at We need a Quick Reference for Abbreviations, a topic initiated on our Discussion Boards by Lynda. You can also visit our search glossary and type in the abbreviation you are interested in learning more about.

 

Here are a few to get you started:*

 

AML = Acute Myelogenous Leukemia

ALL = Acute Lymphocytic Leukemia

CML = Chronic Myelogenous Leukemia

CLL = Chronic Lymphocytic Leukemia

NHL = Non-Hodgkin Lymphoma

MDS = Myelodysplastic Syndrome

 

Do you have any tips or tricks on how to remember so many abbreviations and their meanings?

 

*Learn more about leukemia, lymphoma, myelodysplastic syndrome, and other blood cancers in our Disease Information section on our website.

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Valentine’s Day is one of our favorite times of year, and not just because it gives us an excuse to eat more chocolate (although I’ll admit it’s a good reason to love the day). It’s a reminder that we have helped bring couples together through some of our Team In Training (TNT) events.

 

The Leukemia & Lymphoma Society's TNT program, in case you don’t know, is the world’s largest endurance sports training program. Their incredible coaches train people for marathons, half marathons, triathlons, and century 100-mile bike rides.  And while they train, participants raise funds to help find cures for leukemia, lymphoma, and myeloma research and  provide information and support to patients and their families.

 

While the goal has been to help LLS, participants have also found lifelong friends and love.

 

Melissa Kushnick and T. J. Caplinger met at a TNT practice for the 2006 Nike Women’s Marathon, a Race to Benefit The Leukemia & Lymphoma Society. For T. J. it was love at first sight, “As soon as I left practice I called my friend and said, I know this sounds crazy but I just met the girl I’m going to marry.”

 

They began dating, and decided that they would participate in the following year’s event. At the 2007 Nike Women’s Marathon, T. J. asked Melissa to marry him and she said yes. They plan to marry in a few weeks on March 7, 2008. Congratulations T. J. and Melissa!

The signs asking Melissa to marry T. J.

Putting on the ring!

T. J. & Melissa by the shore

 

Take a moment to read some other TNT love stories – these couples are celebrating the day they met, fell in love, and helped LLS. Today is probably one of their favorite days as well.

 

Want to find a valentine? Find or celebrate love with us at one of our TNT events:

 

Team In Training is currently recruiting for their Summer season. Events include: Rock 'n' Roll Marathon® , San Diego, CA - June, 1 2008; America's Most Beautiful Bike Ride, Lake Tahoe, NV - June 1, 2008; Mayor's Marathon and Half Marathon, Anchorage, AK - June 1, 2008.  For more information please call (800) 482-TEAM or visit www.teamintraining.org.

 

Watch one of our 2008 Team In Training videos.

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Take a few minutes and go to a website like Technorati. Type in the search bar “leukemia” and see how many blog posts come up. I just did a search and as of right now it says that 677 posts are tagged “leukemia” and there are 152 blogs about leukemia. There are also quite a few videos and photos.

 

It’s inspiring to read some of these blogs. It’s clear that writing about their experiences with cancer, whether they are a patient, caregiver or family member, is therapeutic and relieving. Not only are they helping themselves, the people who run across their blogs are finding hope and encouragement.

 

Take a look at How's Dave Doing?, a blog written by Anna about her husband Dave’s battle with leukemia. It’s both touching and informational. Read her recent post reviewing our very own Emerging Therapies for Blood Cancer Patients seminar held in San Francisco.

It was a strange feeling to sit in a huge ballroom, filled with hundreds of people, and think, "Most of these people have Leukemia or Lymphoma." You'd see a couple, and try to guess which one was the patient and which one was the caregiver, and it wasn't possible.

Another blog, The Plog, written by PJ, is about a woman’s experience as a leukemia patient and cord blood transplant recipient. She writes both about normal day to day experiences and surviving cancer. In January she celebrated her birthday with a morning run:

What made me go out for a run this morning at 7:30 when the temperature flirted with thirty? The flip answer is: because I could. The real reason I braved black ice was that today marks the completion of 54 years of living. There were moments over the past 22 months when I didn't think I'd survive to celebrate this day, let alone run two miles. My mother died of cancer when she was 53, and ever since I received my leukemia diagnosis at 52, it's been impossible for me not to dwell on her untimely death. Those were footsteps I did not want to follow.

Do you have any favorite personal cancer blogs that you follow? Do you write one?

 

*From Wikipedia.org: Blogosphere is a collective term encompassing all blogs and their interconnections. It is the perception that blogs exist together as a connected community (or as a collection of connected communities) or as a social network.

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Did you know that The Leukemia & Lymphoma Society sponsors regular teleconferences covering topics ranging from Cancer Survivorship: Practical Tips for Managing Your Financial and Insurance Issues to Emerging Therapies in Myeloma? Patients and caregivers, as well as healthcare professionals, are encouraged to register for these free events.

 

Here are a couple of upcoming teleconferences:

 

February 13, 2008 - Advocating for Your Child's Learning Needs: Through Treatment and Beyond

February 21, 2008 - Stem Cell Transplantation: Current Trends and Future Directions

 

If you are unable to attend these teleconferences as they happen they are archived later on our website which you can access via our podcast feeds or in the National Education Workshops section of our website.

 

Have you listened in on one of our sponsored teleconferences before?

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