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RE: Dawna Stone - The Inspiration Behind The Women’s Running Magazine Women’s Half Marathon

whitleyt — Tue, 25 Aug 2009 21:31:50 GMT

And THANK YOU Tampbay.com Personalbest author, Charlotte Sutton, for your Get ready to run (or walk) your favorite race post!

RE: Dawna Stone - The Inspiration Behind The Women’s Running Magazine Women’s Half Marathon

whitleyt — Tue, 25 Aug 2009 16:20:16 GMT

Thanks to the folks at fitbottomedgirls.blogspot.com for their great post on the Women's Half Marathon event. See:
Want to train for a race, but can't decide which one? Check out this half marathon in sunny Florida!

RE: Exciting new way to support The Leukemia & Lymphoma Society

ACP — Sat, 21 Feb 2009 03:50:56 GMT

These cards are GREAT! Thanks for making them available!!

RE: Why I called myself Crazy Ken

volp91w — Thu, 29 Jan 2009 21:40:37 GMT

That is a really touching story... just remember your sister lives through you everyday and every time you feel proud about something you have done she feels proud with you and for you. Death is not really the end in my opinion, just a transition, the people that loved you will carry you in there hearts like you still carry her- like how a mother would toward her baby. Hold her in your heart and deify her, make her dreams come through you, that is what love forever means, and with that there is no death. Only transition.

You will inspire people like how she inspired you, and they will hold you in there hearts long after you pass also. That is spiritual evolution. She made you a better person, so return the favor to others, inspire them and make them better also. Good luck my friend.

RE: New Year’s Resolution – Communicate Better with My Doctor

Alan_livingstrong — Sat, 24 Jan 2009 14:11:46 GMT

Samantha

You write some very some informative blogs. I have read quite a few and I find them to be relavent and very helpful. Keep up the good work.

Your survivor brother, (and TNT alumni)

Alan Harmon

RE: Jumped in with both feet

cll051362 — Wed, 19 Nov 2008 17:21:00 GMT

Quick Update, even though the walk is long over. We had a bunch of Cub Scouts join us for the walk. Even though this was our first time out, our team came up just short of $2,500. I'm thinking I'll donate the last $35 myself just to make it. I keep all cancer patients in my prayers.

RE: Do the costs of some cancer medications outweigh the benefits?

lucasdiver — Mon, 13 Oct 2008 18:36:01 GMT

I'm 28 and was just recently diagnoised with CML on September 3rd 2008. I'm on Gleevec now and have so far had a good respose to it and it seems to be working to stop the the Ph chromosome. Both my doctor and the tranplant center say I should continue treatment with Gleevec and do not recommend anything else at this time. I have major medical coverage and no prescription coveage with a large insurance company, but they do not cover the $4000 per month for the drug to keep the cancer at bay, and because my wife and I make more than $40,000 per year, we do not qualify for the Novatis Patient Assitance Program. I find it absolutely absurd that there is no help for a family who makes over $40,000 per year to afford a medication that costs $48,000 per year (while the generic costs 90% less). I also read in my research that Novartis only covered 10% of the orignial developmental cost of Imatinib Mesylate (Gleevec)with 90% coming from federal, state and local grants, yet they receive 100% of the profits from the sale of the drug.

Norvartis also filed a large lawsuit in India to prohibit generic manufacturers there from making generic Gleevec. There was a large outcry from the international community and the Indian government denied their request for protection under their patent laws. If they had won, this would have set a precident for other money hungry drug companies to charge whatever they wanted while people who really need the drug and cannot afford it, would die.

All in all, I must do everything that I can to pay for the drug to stay alive. It's worth it for me to be here with my wife and family that I love.

RE: Do the costs of some cancer medications outweigh the benefits?

millss — Fri, 26 Sep 2008 15:35:10 GMT

The following is a response from Patient Services at LLS:

winmo - Thanks for your response. It's challenging enough dealing with cancer, let alone having to deal with the financial costs that go along with it. In case you are not aware, our Co-Pay Assistance Program is now covering up to $5,000/year in healthcare costs for patients with CML who qualify. You can learn more about how it works by going to www.lls.org/copay.

RE: Patient Programs Update

runningwriter — Thu, 25 Sep 2008 02:12:52 GMT

I see that there will now be a support group sponsored by LLS in Western Mass at the Cancer House of Hope. I'm glad to see this happening. Often blood cancer survivors get "left out."

I am writing about my battle with leukemia in my blog, which is at runnerwrites.blogspot.com

I will probably do a post about the new group.

RE: Do the costs of some cancer medications outweigh the benefits?

winmo — Sun, 14 Sep 2008 22:21:47 GMT

My co-pay has increased 3 times in the past 2 years. I first paid a $30 copay for a 3 month supply for 400mg/day for Gleevec, then the insurance decided to name it a "specialty drug" and had my physician complete monthly prescriptions forcing me to pay co-pays monthly, or $50/month. My employer will now change prescription providers and I have been informed that I will be forced to pay up to $100/month for the specialty drug. In addition, convenience of obtaining the medication has become complicated since it is not delivered through a neighborhood pharmacy. The provider decided that it is delivered through UPS to my home and requires a signature because of the high cost, which is difficult since I work full-time and am not home during established delivery times. It's ironic that Gleevec has made me well enough to work full-time with insurance coverage, but the high cost (not CML) makes normal life difficult