@LLS - See what's happening

@LLS

3 Posts tagged with the video tag

 

Jadrian, you're currently undergoing treatment, but you didn't lose your hair. Why did you decide to go Totally Baldacious?

When I was diagnosed with CML, I didn't know what to think. The whole process was pretty scary, but as I learned more about my treatment and prognosis, I knew I was one of the lucky ones. There are so many other people who are dealing with cancers or treatments and not responding nearly as well. If shaving my hair helps to raise awareness and money for cancer research and treatment, it's a small price to pay. I hope my story and experience inspire others to help as well.

 

Are you shaving your head for anyone in particular?

A friend of mine, who was diagnosed with CML shortly after I was, has not responded to the same treatment that works for me, and is facing a bone marrow transplant very soon. This is one small way that I can walk beside him and lend him strength on his own journey forward. My dad fought and won his battle with colon cancer a few years ago, and his strength and character throughout my life are also of unending inspiration to me.


How important has the support and solidarity you've received meant to you during your treatment?

It is invaluable. Knowing my friends and family are there with me every step of the way means the world to me. The community of fellow survivors online welcomed me warmly, and the forums provided me with a platform for educating myself about leukemia, its treatment, and new advances.

 

We have a number of support resources available online -- from the Blood Cancer Discussion Boards to online chats. Have you taken advantage of any of these resources?

I delved deep into the community knowledgebase in the online discussion boards immediately following my diagnosis, and am grateful for the outpouring of news and support from its members.

 

What LLS resource have you found the most helpful?

For me, the discussion boards have been the most helpful.

 

You've filmed your hair being shaved! (View Jadrian's video here above).  What a great video! How else are you promoting your participation in Totally Baldacious online?

Via Facebook and Twitter, of course, as well as on the community pages for the LLS   and the Totally Baldacious campaign itself! I'm excited to see response videos on YouTube of other people around the world going Totally Baldacious as well, so if you've got 'em, post 'em!


It's clear this year's Valentine's Day is one you won't soon forget.  Thanks for going Totally Baldacious, Jadrian, and helping emphasize how important it is to show solidarity and support for all cancer patients!

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We are where you are.  Be honest.  How many hours a day do you spend tweeting or updating your Facebook status?  Embrace it.  We have.

 

You may have noticed the recent addition to the community homepage - the "Follow Us" box, which links to many of our social networking pages. 

 

LLS has a major presence on the social networking sites you use regularly.  We're always connected.  Not a day goes by when we're not blogging on this community, chatting with cancer patients and survivors in our discussion boards, tweeting updates to our Twitter followers, or keeping our fans informed on Facebook.  We've cultivated some of our closest relationships online.

 

September is Leukemia, Lymphoma and Myeloma Awareness Month.  In honor of this important time of year, LLS is vowing to be even more connected with our supporters.  We're extremely interested in what our volunteers, supporters and participants across the country - and across the globe - have to say.  Staying connected helps us better understand what we can do for you.

 

Meet Christine Brantley.  Her son, Jake, is a survivor of childhood leukemia. Christine was kind enough to share her family's story with us.  Through our social network, we're able to share the Brantley's tale with hundreds of thousands of people world-wide.  The first step to finding cures for blood cancers is to build awareness about these diseases.

 

 

Christine and Jake know the importance of funding blood cancer research. As Christine shared in our interview, "I know with research there's a brighter future for everyone with blood cancer."

 

Join our network and then consider what you can do to help support our research and LLS help patients like Jake.

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How many soap fans out there?  Come on, don’t be shy.  Here at The Leukemia & Lymphoma Society, we play favorites.  The hands-down winner is NBC’s The Days of our Lives.  Aside from entertaining audiences for more than 40 years with plot twists and cliff-hangers, drama and romance, the show has played an important role in educating people about LLS.

 

In 2002, Chloe, a leading character, was diagnoses with leukemia.  Following her story, the audience learned about the threats of this disease and the struggle to find a matching marrow donor.  The other characters joined together organize events, donate money, form walk teams and raise money for The Light The Night Walk.  Take a look at this scene, which originally aired on September 20, 2002, where Roman and Kate end a heated argument to participate in walk.

 

The show has been a invaluable supporter of Light The Night.  In these last six years, they’ve featured the event several times, tied in fundraisers and included stories touching some of the most popular characters.  And we love every minute of it!

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