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5 Posts tagged with the leukemia tag

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Jennifer Donnelly is the mother of Matthew, an acute lymphocytic leukemia patient who's story is featured in the Gap Give & Get Campaign.  Gap Give & Get gives you a 30% off coupon to shop at all Gap, Inc. store, with 5% of the proceeds going to benefit The Leukemia & Lymphoma Society.

 

llsphoto.jpgJennifer shared her story with LLS:

 

How did you find out that Matthew had leukemia?


Matthew was diagnosed on December 11th, 2007, when he was two and a half years old. He hadn't been feeling well and our regular doctor thought he had a double ear infection. In fact he did have a double ear infection, but thankfully our doctor also had blood work done on Matthew, which ultimately determined that he had acute lymphocytic leukemia (ALL).  It was devastating at the time, but in hindsight we were glad he was diagnosed early on.


Before Matthew's diagnosis, had you ever heard of leukemia?


To be honest, no -- but I learned very quickly.  I also found a huge support group of people out there who are willing to help.

 

How has LLS been helpful to you and Matthew?

 

We participate in LLS's finanicial aid program and have also participated in The Light The Night Walk twice.  Matthew was also recently named the 'Boy of the Year' for the local LLS chapter here on Long Island.

 

Your son has an amazing smile.  He looks like he has a very positive outlook.

 

He does!  When he was first diagnosed, going to see the doctors so often was difficult and I would try a number of things to make it a positive experience - like dressing up in costumes. Well now, Matthew actually looks forward to going! Once when we were on vacation in Disneyland, he surprised me with "Lets go to the clinic, Mom!"   There we were, in the "happiest place on earth" and he wants to go to the clinic!

 

How is Matthew doing now?

 

Matthew's doing very well. He's in the second year of his treatment, which will continue through 2011.  We are participating in a trial.

 

A clinical trial?

 

Yes, again, before Matthew had been diagnosed, I didn't realize how important clinical trials could be to treatment options.  I found out as much as I could in advance, especially about the protocol that was suggested for Matthew.  Now, I think of all of the people who participated in trials before us and I'm grateful.  If they hadn't, I wonder where we'd be now.  Thanks to previous trials and the people who participated in them, treatments have improved.

 

Have you participated in any previous Give & Get campaign?

 

We participated in both the spring and summer campaigns.  A coupon was forwarded to me via email.  The 30% discount is terrific and knowing 5% of the sale goes back to LLS - even better!

 

Now, when I know of a business, like Gap, that gives back to LLS -- I think, "They're doing this for research, they're doing this for cures, and they're doing this for my son."  It makes me want to cry because I know the true benefit of this kind of support.


Thank you, Jennifer, for sharing your story with us and allowing us to feature Matthew in this campaign.

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We are where you are.  Be honest.  How many hours a day do you spend tweeting or updating your Facebook status?  Embrace it.  We have.

 

You may have noticed the recent addition to the community homepage - the "Follow Us" box, which links to many of our social networking pages. 

 

LLS has a major presence on the social networking sites you use regularly.  We're always connected.  Not a day goes by when we're not blogging on this community, chatting with cancer patients and survivors in our discussion boards, tweeting updates to our Twitter followers, or keeping our fans informed on Facebook.  We've cultivated some of our closest relationships online.

 

September is Leukemia, Lymphoma and Myeloma Awareness Month.  In honor of this important time of year, LLS is vowing to be even more connected with our supporters.  We're extremely interested in what our volunteers, supporters and participants across the country - and across the globe - have to say.  Staying connected helps us better understand what we can do for you.

 

Meet Christine Brantley.  Her son, Jake, is a survivor of childhood leukemia. Christine was kind enough to share her family's story with us.  Through our social network, we're able to share the Brantley's tale with hundreds of thousands of people world-wide.  The first step to finding cures for blood cancers is to build awareness about these diseases.

 

 

Christine and Jake know the importance of funding blood cancer research. As Christine shared in our interview, "I know with research there's a brighter future for everyone with blood cancer."

 

Join our network and then consider what you can do to help support our research and LLS help patients like Jake.

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The Bigelow family knows the importance of Gap's Give & Get program benefiting The Leukemia & Lymphoma Society because, 4 years ago, their son Lance, was diagnosed with leukemia. Lance, pictured here in a shirt he got from Gap during the spring campaign, is living proof. By participating in the spring campaign, the Bigelows took advantage of a 30% discount (available at all Gap, Inc. stores) and ensured 5% of the proceeds would support LLS' fight against blood cancers, the leading cancer diagnosis among children.

 

We wanted to find our more about Lance and his story after his mother sent in his pictures -  including whether they were going to participate in the summer campaign (running July 30th-August 2nd, click here to download the coupon and find out more). Here's more from that conversation:

 

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When was Lance diagnosed with leukemia and how is he doing now?

 

I will never forget the day Lance was diagnosed. He was 29 mos old and had been running a fever for three weeks. Make the long story short, on Monday, October 3, 2005 he was diagnosed and by Friday, October, 7, 2009...he began chemo. After the first round, Lance responded well. He remained in the hospital until May 2006. He was able to return home for 2-3 days but for the main part he was hospitalized. He was diagnosed with AML and it had spread to is central nervous system. Lance has been in remission since Nov. 2005 (and counting). My little prince will be entering first grade this fall and is tackling reading with gusto!!!

 


Battling cancer is as a child is particularly challenging. Were you able to take advantage of any of  our resources - print materials, the call center, local support groups?

 

The print material from LLS was more than helpful. We also received gift cards to CVS and Giant Foods. I was able to speak to someone when ever I had a question and I never heard, "may I take a message"



What's your advice to other families battling cancer?

My advice would be: first prayer and faith (regardless of denomination) and educate yourself. Read as much as you can, it helps facilitate great
circles.jpgcommunication between you and the team of doctors. I am in the medical profession and I understood the terminology, but for me husband, he was able to keep up by reading about AML and treatment options. Also, I believe that we did not become overhelmed because we were informed and we were ableto focus on providing Lance a "normal lifestyle" as possible. Children can sense anxiety and we did not emit any anxiety or fear.

 


You may not know  this, but Gap's spring campaign raised $600,000 for LLS, thanks to families like yours.  Are you considering
participating in the summer campaign?

Gap is our store of choice...their look is classic and timeless. They are comfortable and wash well. Both of my children are mainly in Gap (anything outside of gap is usualy a gift or purchased with a gift card) Iplan on participating on the summer campaign!!!! and getting friends and family involved.

 

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Last spring The Leukemia & Lymphoma Society was included among the charities that Gap, Inc. supports through their Give & Get campaign. If you're reading this blog there's a good chance that you recall this campaign, as a large number of our friends and contacts downloaded a discount coupon on our behalf. So many of you did so that we ended up collecting an impressive $600,000 for our fight against blood cancers!

 

We want to thank all of you who contributed to the Spring campaign -- and all of you who shared the link to the coupon with your networks of friends. You made this happen, and for that we're grateful.

 

Now we'd like to call upon your help in thanking our friends at Gap! How did you feel about participating in this campaign? How has our work at The Leukemia & Lymphoma Society helped you or your loved ones? Share your stories in the comment section of this blog post, below, and help us show Gap the impact of this campaign. We can't think of any better way to say thank you.

 

And if you have pictures of you or your family in some of the Gap, Inc. clothes you acquired through the campaign -- send them in to partner@lls.org and we may feature them on our Gap Thank You page.   Campaigns like Gap's Give & Get program go a long way in serving our mission - helping blood cancer patients live longer, better lives.

 

Thanks to you -- and partners like Gap, we're that much closer to finding a cure for blood cancers.

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In 1961, Ernie Davis was at the top of his game. He fought a daily battle against racial inequality and struggled to prove his worth on the football field. Against the odds, Davis became the first African American to win the Heisman Trophy for his stellar performance at Syracuse University. Unfortunately, his war on the green was not the only one this young man would fight. At 23, he landed an NFL spot with the Cleveland Browns. But, he never made it to the field, having lost his battle with leukemia.

 

A true America hero, Ernie Davis’ life is immortalized in a film opening on October 10, “The Express” starring Rob Brown and Dennis Quaid. Rob Brown, who plays the part of Davis, has been serving as the 2008 Light The Night Walk Spokesman in honor of Davis’ battle. View the trailer here.

 

“Playing Davis has helped me understand that all blood cancer patients deserve to live better, longer lives,” explained Rob Brown. As Spokesman for The Light The Night Walk, he has helped many people understand just how precious life is and how easily cancer can cut it short. See his message to supporters here.

 

Whether you walking for your child, your grandmother, or a Heisman Trophy winner, remember that every step you take puts us one step closer to winning our fight against blood cancers. Thank you for walking!

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