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Jennifer Donnelly is the mother of Matthew, an acute lymphocytic leukemia patient who's story is featured in the Gap Give & Get Campaign.  Gap Give & Get gives you a 30% off coupon to shop at all Gap, Inc. store, with 5% of the proceeds going to benefit The Leukemia & Lymphoma Society.

 

llsphoto.jpgJennifer shared her story with LLS:

 

How did you find out that Matthew had leukemia?


Matthew was diagnosed on December 11th, 2007, when he was two and a half years old. He hadn't been feeling well and our regular doctor thought he had a double ear infection. In fact he did have a double ear infection, but thankfully our doctor also had blood work done on Matthew, which ultimately determined that he had acute lymphocytic leukemia (ALL).  It was devastating at the time, but in hindsight we were glad he was diagnosed early on.


Before Matthew's diagnosis, had you ever heard of leukemia?


To be honest, no -- but I learned very quickly.  I also found a huge support group of people out there who are willing to help.

 

How has LLS been helpful to you and Matthew?

 

We participate in LLS's finanicial aid program and have also participated in The Light The Night Walk twice.  Matthew was also recently named the 'Boy of the Year' for the local LLS chapter here on Long Island.

 

Your son has an amazing smile.  He looks like he has a very positive outlook.

 

He does!  When he was first diagnosed, going to see the doctors so often was difficult and I would try a number of things to make it a positive experience - like dressing up in costumes. Well now, Matthew actually looks forward to going! Once when we were on vacation in Disneyland, he surprised me with "Lets go to the clinic, Mom!"   There we were, in the "happiest place on earth" and he wants to go to the clinic!

 

How is Matthew doing now?

 

Matthew's doing very well. He's in the second year of his treatment, which will continue through 2011.  We are participating in a trial.

 

A clinical trial?

 

Yes, again, before Matthew had been diagnosed, I didn't realize how important clinical trials could be to treatment options.  I found out as much as I could in advance, especially about the protocol that was suggested for Matthew.  Now, I think of all of the people who participated in trials before us and I'm grateful.  If they hadn't, I wonder where we'd be now.  Thanks to previous trials and the people who participated in them, treatments have improved.

 

Have you participated in any previous Give & Get campaign?

 

We participated in both the spring and summer campaigns.  A coupon was forwarded to me via email.  The 30% discount is terrific and knowing 5% of the sale goes back to LLS - even better!

 

Now, when I know of a business, like Gap, that gives back to LLS -- I think, "They're doing this for research, they're doing this for cures, and they're doing this for my son."  It makes me want to cry because I know the true benefit of this kind of support.


Thank you, Jennifer, for sharing your story with us and allowing us to feature Matthew in this campaign.

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Michigan Musicians and The Leukemia & Lymphoma Society Collaborate on Inspirational CD

 

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Legendary folk artists, Peter, Paul and Mary, and nationally acclaimed recording artists Tom Chapin, and Josh White, Jr. are a few of the many Michigan musicians featured on this CD, which was inspired by the battle several of the CD's artists have endured in the fight against cancer.

 

Now available from CDbaby.com, you may order :"As Long As I'm Here" and know that all proceeds will go to support The Leukemia & Lymphoma Society's life-saving blood cancer research.

 

Click here to place your order today!

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Supporters of The Leukemia & Lymphoma Society are using the new LLS Toolbar, raising  money for the cause with every Internet search and online purchase

 

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What if even a fraction of the $140 billion generated by search engine advertising and online shopping was directed towards finding a cure for blood cancers and improving the quality of life of patients and their families?

 

The Leukemia & Lymphoma Society recently teamed up with GoodSearch.com to launch the new Leukemia & Lymphoma Society Toolbar, which gives supporters a chance to raise money for the cause every time they search the Internet or shop online.

 

Once a supporter has added The Leukemia & Lymphoma Society Toolbar to a web browser (like Internet Explorer, Safari or Firefox), each time s/he shops at one of more than 1,300 participating top stores (including Amazon, Target, Apple, Macy’s, Best Buy, Orbitz, Staples and others), LLS will earn a percentage of the purchase price – at no extra cost to the user!

 

The toolbar also includes a Yahoo! powered search box and every time a user searches the web, about a penny is donated to The Leukemia & Lymphoma Society.  The pennies add up - just 5,000 supporters searching four times a day will earn around $73,000 in a year!

 

The Leukemia & Lymphoma Society Toolbar gives supporters at all income levels a tool to help raise funds for our cause.  While doing a search or shopping online, why not raise money for The Leukemia & Lymphoma Society?

 

“We know there are a lot of people who want to do good, but may not have the time or the money to help out.” said Ken Ramberg, Co-Founder of GoodSearch and former President of MonsterTRAK, the largest online career site for college students (now a division of Monster.com). “The new Leukemia & Lymphoma Toolbar makes it as easy as possible.  We’ve taken something people do every day -- searching the Internet and shopping online -- and have turned it into doing good."

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Pioneer in Late Effects Cancer Research Raises Awareness for the  Importance of  Funding  Science for Treatment

 

October 22, 2009

 

See the 'Create a better life for patients'  Op  Ed featured in today's Philadelphia Inquirer.    Dr. Meadows, a long-time supporter of LLS, and renowned oncologist,  is spearheading a campaign to help eliminate the causes of cancer treatment's late effects.

 

To help fund  these  efforts, donate online at www.lls.org/donate.

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This Thanksgiving, tune into FOX for a new holiday variety show, Kaleidoscope.  The show rounds up Olympic skating champions and GRAMMY Award-winning music artists, like Scott Hamilton, Dorothy Hamill, Olivia Newton-John and David Foster. Also performing are Kristi Yamaguchi, Nancy Kerrigan and Olympic figure skating hopefuls Johnny Weir and Rachael Flatt.

 

But the event isn't only about the entertainment.  Kaleidoscope was designed to recognize women and the key role they play in the battle against cancer - as patients, caregivers, and advocates.

 

In addition to The Leukemia & Lymphoma Society, Kaleidoscope has teamed up with nine other cancer-related advocacy partners.  Together, this team of Cancer Advocacy Partners hopes to shed some light on how we're all touched by cancer and can all make a difference.

 

You can help!  Tune in to FOX on Thanksgiving (November 26th) at 4:00pm (EST), immediately following the Thanksgiving Day football telecast. The event will be pre-recorded on Monday, November 16th at 7:00pm at the Verizon Center in Washington, D.C. If you're in the area, tickets for taped performance are on sale now.

 

Find out more at www.womenandcancer.com, or read the press release.

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They not only have a Light The Night Team, they have a Light The Night song! Satellites & Sirens, the alternative Christian rock band, has just released their latest song, "Light The Night" to help support the mission of The Leukemia & Lymphoma Society.

 

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You can hear a clip of the song on their web site. Click here to download the full song and donate $1 to The Leukemia & Lymphoma Society.

 

AddLight The Night to your playlist, then share their web address with your friends.

 

Each $1 download of 'Light the Night' will go to benefit the efforts of LLS to find cures for leukemia, lymphoma and myeloma and to provide education and services for patients with these diseases and their families.

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Steelers Defensive End, #91, Aaron Smith, was joined by the entire defensive line, more than a dozen players and their families, to make up Team Elijah in this year's Light The Night Walk.   The team was formed in honor of Smith's six-year-old son, Elijah, who was diagnosed with leukemia last year.


“It  was an amazing night,” said Tina Massari, Executive Director of The Leukemia & Lymphoma Society Western Pennsylvania & West Virginia chapter, who said the walk raised $600,000, with Team Elijah as one of the top fundraising teams. “Whenever you have someone like  Aaron Smith saying this can happen to anyone and our family is involved and we  want to be a part of it and join us it’s always a huge call to action. People  think he is a Steeler, he is involved and it can happen to him it can happen to  anyone and we want to help out.”

Read the entire story on Steelers.com, the Official Web Site of The Pittsburgh Steelers.  And view the photo gallery in the "Off The Field" section.




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We are where you are.  Be honest.  How many hours a day do you spend tweeting or updating your Facebook status?  Embrace it.  We have.

 

You may have noticed the recent addition to the community homepage - the "Follow Us" box, which links to many of our social networking pages. 

 

LLS has a major presence on the social networking sites you use regularly.  We're always connected.  Not a day goes by when we're not blogging on this community, chatting with cancer patients and survivors in our discussion boards, tweeting updates to our Twitter followers, or keeping our fans informed on Facebook.  We've cultivated some of our closest relationships online.

 

September is Leukemia, Lymphoma and Myeloma Awareness Month.  In honor of this important time of year, LLS is vowing to be even more connected with our supporters.  We're extremely interested in what our volunteers, supporters and participants across the country - and across the globe - have to say.  Staying connected helps us better understand what we can do for you.

 

Meet Christine Brantley.  Her son, Jake, is a survivor of childhood leukemia. Christine was kind enough to share her family's story with us.  Through our social network, we're able to share the Brantley's tale with hundreds of thousands of people world-wide.  The first step to finding cures for blood cancers is to build awareness about these diseases.

 

 

Christine and Jake know the importance of funding blood cancer research. As Christine shared in our interview, "I know with research there's a brighter future for everyone with blood cancer."

 

Join our network and then consider what you can do to help support our research and LLS help patients like Jake.

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New collaboration supports LLS while making more great seats available to the summer’s most sought-after concerts.

 

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The Leukemia & Lymphoma Society has partnered with Tickets-for-Charity®  to offer fans a convenient way to purchase great seats to high-demand concerts – Coldplay, Billy Joel & Elton John, Kenny Chesney, Counting Crows and many more – while supporting the fight against blood cancers. Seats on Tickets-for-Charity’s website are available at face value plus a separate donation amount that now may also directly benefit LLS. Learn more

 

Tickets-for-Charity connects with artists, managers, venues and promoters to set aside an allotment of seats to be sold on its website for typically the same price or better than fans would pay elsewhere. The difference with Tickets-for-Charity is that 100% of the benefit above face value goes directly to supporting partner charities, including LLS, and the original face value of the ticket is paid back to the artist. Tickets-for-Charity charges an industry standard service fee to help maintain the platform and facilitate all donation processing.

 

Recently profiled in The Wall Street Journal, Tickets-for-Charity CEO Jord Poster notes that the purpose of Tickets-for-Charity is to give concertgoers the opportunity to help others. "All we're doing is creating a socially positive option for consumers when they can't find what they want," Poster says. "Rather than paying $400 to a broker or scalper, they can pay $400 to Tickets-for-Charity. The difference is that most of the benefit is going to charity rather than a secondary reseller."

 

Visit ticketsforcharity.com when you're looking for your seats to the next hot concert -- and know you can easily support life-saving cancer research when you do.

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Thanks to our colleagues at Gap and our friends online, our summer Give and Get campaign promotion was another success! Because of you and your efforts sharing this promotion online, The Leukemia & Lymphoma Society will receive nearly $500 thousand to support our life-saving research to find a cure for blood cancers like leukemia, lymphoma, Hodgkin's disease and myeloma. That's an amazing accomplishment for one weekend worth of shopping at Gap, Inc. stores!

As you noticed during the launch of this campaign, we featured Lance Bigelow (see our launch blog post, Lick Leukemia with LLS and Gap), who is living proof that the research we fund has a direct impact on patients. 60 years ago, when LLS was founded, a blood cancer diagnosis was almost always fatal. Since that time, the nearly $1 billion dollars we have invested in innovative research has helped to increase survival rates of some blood cancers by double or even triple. In fact, blood cancer survival rates rose by as much as four-fold from 1960 to 2000.

All of that was possible thanks to partners like the Gap and people like you - who either directly participated  in our fundraising efforts or helped spread the word. Your support makes a difference.

Thank you for helping us serve our mission to find a cure for all blood cancers and help patients and their families live better, longer lives.

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If you're in Manhattan on September 12th, watch out as the city will be stormed with brides and grooms on the hunt for diamonds!  Michael C. Fina and Tacori, leaders in the jewelry and bridal industry, have partnered to host a diamond scavenger hunt. Proceeds from “Diamond Dash: Dash for a Diamond & a Cure” will support The Leukemia & Lymphoma Society (LLS).

 

The dashers will race down the streets of NYC, solving clues sent via SMS, and stopping at various wedding-related destinations throughout the city.  The first couple to reach each destination will be awarded with a prize valued up to $3,500! And, the couple that reaches the final destination first will be awarded an incredible Grand Prize.

 

Grand prize winners of the Diamond Dash will receive a beautiful handcrafted Tacori engagement ring setting, matched with a Tacori Diamond, both valued at approximately $20,000, as well as a honeymoon package to Waikoloa Beach Resort on Hawaii's Big Island, including roundtrip airfare and four nights hotel accommodations at Hilton Waikoloa Village.  The dash will culminate with a once-in-a-lifetime proposal opportunity.

 

Think you know all there is to know about NYC's wedding hot-spots and trivia? Do you and your special someone Want a chance to grab some prizes? Sign up for the event at www.diamondsmakeadifference.com.  We're limited to 1,000 teams, so act fast.

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Last week Aaron Smith, who's son, Elijah is battling leukemia, launched The Leukemia & Lymphoma Society's mobile fundraising campaign through a 20 second video spot at the Steeler's pre-season opening game.

 

Sponsored by Hefren-Tillotson, the campaign was popular with local media and was then picked up nationally. You can see a video story on this campaign on the Sports Illustrated Vault.

 

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As the video story by KDKA's John Shumway notes, you don't have to be at Heinz Field to support Aaron's campaign.

 

Simply pick up your cell phone, and Text LLS to 90999 to donate $5 to The Leukemia & Lymphoma Society!

 

For everyone who does, you'll receive a text to confirm your donation of just $5. Reply with a YES -- and you've done it! You've helped find a cure!

 

With that a one-time $5 donation will be added to your mobile bill. Standard messaging rates may apply. Go to mGive.com/a for terms and help.

 

Thank you,  Aaron, for your support launching this innovative campaign, engaging the "Steeler Nation" and inspiring us all!

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One of the things that we love about our events is how they enable people to meet others working towards the same goals –trying to help end blood cancers, and having fun while doing it. Every once in a while we hear about a story of how one of our programs has been instrumental in helping people develop an important personal relationship, and I think that following deserves some retelling

 

Michelle Fried has a long history with our National Capital Area chapter (NCA). As a volunteer, participant and Board of Trustees president, Michelle has been a dedicated supporter of LLS for many years.

 

Because of her passion and well-rounded experience with LLS, Michelle was chosen as an ambassador-of-sorts to help encourage participation in LLS events.  Last year, this role brought her face-to-face with Jim Galvanek, a 10-year leukemia survivor.  Not only did this meeting lead to Jim being named NCA’s 2008 Man of the Year, but eventually, to an unexpected romance.

 

The two amazing volunteers quickly became good friends.  Their friendship turned into a lasting connection.

 

This summer, The Light The Night Walk Kick-off was held at National Stadium, home of the Washington Nationals, just before the start of a game. Along with about 500 other people, Jim and Michelle were there showing their support for LLS.  Jim led Michelle to the stadium rooftop, as the game began so the couple could get a bird’s eye view of the field. It was up there that they shared a private moment together and Jim asked her to marry him.

 

After sharing the news with friends and volunteers alike, the two enjoyed a few innings.  Soon after, the Jumbotron lit up naming Jim and Michelle "Fans of the Game.”

 

The NCA Deputy Executive Director, one of the lucky people to see these two lovebirds' relationship evolve, said that it has been really sweet to watch two good friends and amazing volunteers make a lasting connection and remember how LLS has been instrumental in their relationship.

 

Michelle and Jim have not only found each other, but they have also given much of their personal time to LLS – something for which we at LLS are grateful for every day.

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The Bigelow family knows the importance of Gap's Give & Get program benefiting The Leukemia & Lymphoma Society because, 4 years ago, their son Lance, was diagnosed with leukemia. Lance, pictured here in a shirt he got from Gap during the spring campaign, is living proof. By participating in the spring campaign, the Bigelows took advantage of a 30% discount (available at all Gap, Inc. stores) and ensured 5% of the proceeds would support LLS' fight against blood cancers, the leading cancer diagnosis among children.

 

We wanted to find our more about Lance and his story after his mother sent in his pictures -  including whether they were going to participate in the summer campaign (running July 30th-August 2nd, click here to download the coupon and find out more). Here's more from that conversation:

 

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When was Lance diagnosed with leukemia and how is he doing now?

 

I will never forget the day Lance was diagnosed. He was 29 mos old and had been running a fever for three weeks. Make the long story short, on Monday, October 3, 2005 he was diagnosed and by Friday, October, 7, 2009...he began chemo. After the first round, Lance responded well. He remained in the hospital until May 2006. He was able to return home for 2-3 days but for the main part he was hospitalized. He was diagnosed with AML and it had spread to is central nervous system. Lance has been in remission since Nov. 2005 (and counting). My little prince will be entering first grade this fall and is tackling reading with gusto!!!

 


Battling cancer is as a child is particularly challenging. Were you able to take advantage of any of  our resources - print materials, the call center, local support groups?

 

The print material from LLS was more than helpful. We also received gift cards to CVS and Giant Foods. I was able to speak to someone when ever I had a question and I never heard, "may I take a message"



What's your advice to other families battling cancer?

My advice would be: first prayer and faith (regardless of denomination) and educate yourself. Read as much as you can, it helps facilitate great
circles.jpgcommunication between you and the team of doctors. I am in the medical profession and I understood the terminology, but for me husband, he was able to keep up by reading about AML and treatment options. Also, I believe that we did not become overhelmed because we were informed and we were ableto focus on providing Lance a "normal lifestyle" as possible. Children can sense anxiety and we did not emit any anxiety or fear.

 


You may not know  this, but Gap's spring campaign raised $600,000 for LLS, thanks to families like yours.  Are you considering
participating in the summer campaign?

Gap is our store of choice...their look is classic and timeless. They are comfortable and wash well. Both of my children are mainly in Gap (anything outside of gap is usualy a gift or purchased with a gift card) Iplan on participating on the summer campaign!!!! and getting friends and family involved.

 

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World-renowned actress and writer, Tina Fey, is lending her voice as the 2009 Light The Night Walk National Spokesperson.  Her message is direct and to the point.  "Cancer.  It's a dark word.  When it's directed at you or a loved one, it can turn your world upside-down..."


Watch this video of Tina's national television PSA for The Leukemia & Lymphoma Society.

 

 

Truer words have never been spoken.  Luckily there's a way to shed some light.  It's time to walk the talk.  Join Tina Fey and thousands of others for The Light The Night Walk.  Registration has begun.  You can be a part of the fight against blood cancers by signing up for a walk near you today.

 

Tina is also featured on GoodSearch's Who's Doing Good?  You can use GoodSearch as a simple way to help support LLS.   Visit GoodSearch.com and select LLS as your charity of choice.  Then, search away!  Every time you search, you're helping to raise funds for LLS.

 

Find a Light The Night Walk near you, and regsiter today!

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