What Matters: Activity

I'd be curious to know if they've developed new techniques that allow them to do auto's for AML.  We've only seen that a few times.   Take care, Kelly

I'm 5 years post transplant.  I did relapse last year (extremely rare).  Fortunately, the chemo kicked in GVHD and just the right level of GVHD.  I'm doing well now.  I'm still handling fatigue but…

Any news from your donor yet?  I'm sorry to hear that they've gone awol.   Take care, Kelly

Thanks sweatpeas mom for trying to make me better. I really am afraid whenever I hear that something in my blood work is abnormal. I sure hope it's because of Prednisone. My apetite is again raging…

Thanks to everyone who sent prayers and support.Karen,s surgery went well with no lymph node probs.But she is in alot of pain as one can imagine.Still try to get some phone connections to jakafi…

Tex,     Short term?  If I can get two years on Nexavar, that equals my 25% chance of making it for two years with a transplant.  That's also two more years for possible new cures or…

Although it is a favorite of mine, I am fairly sure it will once again become a fond memory

Traci, I can't imagine how much work goes into the processing and sending out these and other drugs.  I won't revisit the entire story but my first two week trial of Sprycel was stolen off the UPS…

He looks very stylish but would still roll around the floor with him, we could remove his formal attire until play time was over.

I'm asking I'm asking!

I had a Cuban cigar in Canada once.  It sucked.  Guess I should have dropped some coin on it instead of getting the bargain basement one.

Great news, Chris.  I'm sure the rest of the development will come along soon and the chimerism will be great.   Let us know and stay in touch.   Blessings

I have to disagree that the price is set based on the value it delivers.  The price is set based on a flawed third payer system that does not reflect true market dynamics.  The reality is that if…

Thank you for the kind words and support, Chris! And congratulations to you, also! 8 months of being off treatment completelyis amazing!! That's very exciting news :). We just got word back from Dr.…

I think we got there attention, no more spam and hopefully the registration process since they closed it down won't allow spamers to register   Thanks to all who helped   Johnc

I ran a 20K after the gym the day before my PCR. I was thinking it could increase my PCR...Guess I'll find out

Hi Judy!   Most everything has been covered and I wanted to add my 2 cents   It took me some time to get to an acceptable new normal after an auto transplant.    It's been about 2.5 years and my…

Hey Pin,   So, GI issues have been a recurring theme for me off/on over the first year of Gleevec 400mg - and I've been convinced that it's a side effect of the TKI.  I tried the dose splitting /…